Extreme aching all over body - constantly

girlladywoman · 2023-06-15T06:50:33+00:00

So I have - can I call it chronic? - aching all over my body constantly. It's similar to the aching from flu but not as bad unless in the night and morning. It's been this way for months and I just can't work out why?! Has anyone experienced this? I sleep well, eat well, exercise, drink plenty of water. I've had lots of blood tests which have come back fine. But still here I am aching in every inch of my body constantly - but mainly first thing in the morning. It almost stings in some parts!

DustyLee123 · 15/06/2023 07:52

How old are you ? Have you tried a good quality omega 3 ?

TheRozzer · 15/06/2023 10:16

yes, I have fibromyalgia

Original poster

girlladywoman · 15/06/2023 10:49

I am 39. Well I eat a lot of fish which is high in omega 3?

OP posts:

Original poster

girlladywoman · 15/06/2023 10:53

I've seen fibromyalgia, arthritis and lupus are on the NHS website mentioning aching etc. I've been tested for arthritis. How do they test for fibromyalgia? I do have IB but never diagnosed with IBS and it isn't all of the time - more hormonal.

OP posts:

PinkFootstool · 15/06/2023 11:10

Fibro is a diagnosis in the absence of other diseases, so no to tests.

My FIL has just been diagnosed with polymialgia rheumatica, but it's a disease of people aged 65+, treated with oral steroids for 1-2yrs (and a pile of other meds). He's been in agony for months, lost 2st in weight, struggled with walking etc and blood tests this week diagnosed it. It does say it can be diagnosed younger, but it's rare. Have a look maybe? He's had 2 days of steroids and he already feels a new man, absolutely amazing.

https://www.nhs.uk/conditions/polymyalgia-rheumatica/

Polymyalgia rheumatica

Find out about polymyalgia rheumatica (PMR), a condition that causes pain, stiffness and inflammation in the muscles around the shoulders, neck and hips.

https://www.nhs.uk/conditions/polymyalgia-rheumatica

Fireandflames666 · 15/06/2023 16:29

Yes, I have this every day and was diagnosed with Fibromyalgia two years ago. I'd get checked out tbh.

S0upertrooper · 15/06/2023 16:54

A rheumatologist can diagnose fibromyalgia. I have it and also UCTD (Undifferentiated connective tissue disease) Both give me painful joints and fatigue, sometimes worse than others.

It very debilitating and frustrating.

Original poster

girlladywoman · 16/06/2023 07:54

Hi all - many thanks for your replies. Is there a cause of it and does it run in families? I was thinking this morning as I woke up, that it feels like DOMS (delayed onset of muscle soreness) like you get after a workout.

I will do as you say and get it checked out. I thought it was from vaping and taking in too much nicotine.

OP posts:

worldwidetravel2017 · 16/06/2023 17:11

I had glandular fever last year
Am still struggling with weird legs & fatigue..
Have an appt with a long covid dr soon.
Might ask gp 4 a referal 2 rhuematologist 4 poss fibromyalgia

worldwidetravel2017 · 16/06/2023 17:12

I have a blood 4 arthritis soon

HairyKitty · 16/06/2023 17:13

Could this be long covid?

worldwidetravel2017 · 16/06/2023 17:16

I agree - op could see a long covid dr
( i have that next week too)

Isthisexpected · 16/06/2023 17:16

Have been to a naturopath? They can help alongside NHS tests .

QuestionableMouse · 16/06/2023 17:20

Long Covid left me feeling like this for ages. Its worse in the cold.

QuintanaRoo · 16/06/2023 17:46

Have you had your vitamin d checked?

worldwidetravel2017 · 16/06/2023 20:16

QuintanaRoo · 16/06/2023 17:46

Have you had your vitamin d checked?

Thats also a good shout :)
I have similar 2 op and my gp told me last month 2 take vit d too

worldwidetravel2017 · 16/06/2023 20:17

QuestionableMouse · 16/06/2023 17:20

Long Covid left me feeling like this for ages. Its worse in the cold.

Sorry to hear that

BigPussyEnergy · 16/06/2023 21:06

See your GP and ask for some blood tests.

Could be any number of things so that’s a good place to start. All over aches and feeling like wading through treacle were signs of thyroid disease for me.

Original poster

girlladywoman · 17/06/2023 00:07

Hi guys! I had loads of blood tests and all clear - incl vitamin d. I was diagnosed with long covid a couple of years ago but it had kinda gone. Maybe I had covid again without realising?!? I have also been told by various GPs and consultants that the long covid could actually be long term side effects of the vaccine rather than covid itself.

OP posts:

QuestionableMouse · 17/06/2023 00:42

How long ago were your bloods done?

My LC gets better and worse. I had a great few months, then stupidly did too much on holiday and have been on a downswing.

Doggydarling · 17/06/2023 01:21

worldwidetravel2017 · 16/06/2023 17:11

I had glandular fever last year
Am still struggling with weird legs & fatigue..
Have an appt with a long covid dr soon.
Might ask gp 4 a referal 2 rhuematologist 4 poss fibromyalgia

Please follow up on this ASAP. I had glandular fever aged 12, this year I 'celebrate' 40 years of fibromyalgia as a result of that infection. I had to retire from a career I loved in my 30's, I was told at 25 nit to put my body through another pregnancy (thank god for an unplanned pregnancy aged 20), I needed so much help after having my ds,when he was a toddler it hurt when he held my hand, I'd wonderful parents and brother who really made it possible for me to be a mother, 30 years later we still say my ds had 4 parents. I'm on medication since I was 16, my education suffered but I made up for it in my 20's through pure determination, by my mid 30's I was struggling to walk, I missed out on so much but I met and married a fantastic man who has been so supportive, I moved counties 14 years ago and changed gp's, she immediately changed my medication and brought in the big guns, I'm in oxycontin and oxynorm, strong drugs but a small dose with no increase in all those years and it gave me back a quality of life I'd been missing. I also did a pain management program which taught me to pace myself and I still stick with that. Get help early, it can make such a difference. Don't be put of by doctors saying it's in your head (or growing pains like I was told). Also, what age are you?? I know quite a few who has been diagnosed with fibro but it turned out they were peri menopausal and as soon as they started hrt the symptoms vanished. Best of luck and I'll be thinking of you.

worldwidetravel2017 · 17/06/2023 08:59

Doggydarling · 17/06/2023 01:21

Please follow up on this ASAP. I had glandular fever aged 12, this year I 'celebrate' 40 years of fibromyalgia as a result of that infection. I had to retire from a career I loved in my 30's, I was told at 25 nit to put my body through another pregnancy (thank god for an unplanned pregnancy aged 20), I needed so much help after having my ds,when he was a toddler it hurt when he held my hand, I'd wonderful parents and brother who really made it possible for me to be a mother, 30 years later we still say my ds had 4 parents. I'm on medication since I was 16, my education suffered but I made up for it in my 20's through pure determination, by my mid 30's I was struggling to walk, I missed out on so much but I met and married a fantastic man who has been so supportive, I moved counties 14 years ago and changed gp's, she immediately changed my medication and brought in the big guns, I'm in oxycontin and oxynorm, strong drugs but a small dose with no increase in all those years and it gave me back a quality of life I'd been missing. I also did a pain management program which taught me to pace myself and I still stick with that. Get help early, it can make such a difference. Don't be put of by doctors saying it's in your head (or growing pains like I was told). Also, what age are you?? I know quite a few who has been diagnosed with fibro but it turned out they were peri menopausal and as soon as they started hrt the symptoms vanished. Best of luck and I'll be thinking of you.

Show quote history

Thank you so much for sharing about your experience. Sorry to hear as well although glad tablets have helped. Im mid 30s. Im going to ask Gp 2 read your post.
Mad thing is - i actually had a private rhuematologist booked 4 April ish but cancelled it when drs discovered my feretin was only 8 - & where i had feretin iv pumped into me.
Its all so frustrating re my legs - mon eve they were amaze - most likely as id been stationary / in most of that day b4 the evening out.
Thurs eve and fri am however they were ridic ( i had used them wed and thurs 4 'life ' )
My body has dealt with so so much - was in hospital in may - having polyps removed from my bowel.
Thanks so so much for your in sight

I remember booking the private rhuematologist as they said 6 month wait on NHS. I cancelled it when they decided they were guna pump feretin / iron iv into me due to low feretin.
Feel like i should book private rhuematologist again / now

lljkk · 17/06/2023 11:39

Are you overweight?
Do you have a physical job, are you on your feet all day?
What form of daily exercise do you take, and for how long?

Which parts of your body don't ache, have you found any activity that makes the aching worse and which body parts are made worse?