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Is this Parathyroid blood result too HIGH?

5 replies

medianewbie · 05/06/2023 09:47

I get annual bloods done on NHS.
Used to be done at Hospital now local GP who are poor (told they're all done when they're not, told they're all okay when they are not, actions not taken etc)

this year all seem okay except my Parathroid result which is 10.36 when the range of normalcy given is 1.59 - 7.24. I remember it was also high last year but I was told, 'oh, we'll check again in a year, you feel okay don't you?'.

Any advice please?

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medianewbie · 05/06/2023 09:53

General 'complaints' atm are fatigue, muscle / bone pain, poor sleep, huge weight gain. Anxiety. I have been told it's all just 'the menopause'. I'm 55, still menstruating but beginning HRT now, been waiting 20m for Sleep Apnea overnight study (prev history, won't give me a new Cpap without fresh study).
I am 5 years post roux en y but have regained 4st in last 3 years.
Obviously there are various things here & not just high parathyroid but I feel crap & am bothered that I've been told 'it's fine' when it's 2nd yr its 'too high'?

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medianewbie · 06/06/2023 15:07

My calcium is 2.35 (range 2.1-2.6 so bang in the middle)

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HundredMilesAnHour · 06/06/2023 18:26

It's a little unusual to get PTH taken as part of standard blood tests. Is there a reason why they started doing this?

Do you know if you PTH and calcium were taken correctly?
[Two different sample tube types are required, an EDTA sample for PTH and a plain serum sample for simultaneous calcium. Draw Gold/RUST top tubes first as EDTA contamination will cause falsely low calcium levels].

It might be worth asking to have a urine test done to confirm your calcium levels are normal.

Is your vit D normal?

Lots of info to read here in case it is a genuine parathyroid issue:

Primary Hyperparathyroidism - Parathyroid UK

In Primary Hyperparathyroidism (PHPT or Hyperpara), too much parathyroid hormone is produced by one or more of the parathyroid glands because they have become enlarged or overactive. This in turn causes the body to release calcium from the bones into t...

https://parathyroiduk.org/hyperparathyroidism/primary-hyperparathyroidism

HundredMilesAnHour · 06/06/2023 18:28

Be aware that parathyroidism can be hard to get treated on the NHS. People have to wait for years and really push hard to get treated unless their PTH and calcium levels are both very high.

medianewbie · 06/06/2023 18:59

@HundredMilesAnHour thank you that's really helpful.
I suspect the bloods weren't done in order no.
I had roux en y 4 years ago so I get fairly comprehensive annual bloods.
Or I did, but once the Hospital discharged me & I went back to the GP, they have not done the full number of tubes that were done before. Plus my Vit D was bounced back as 'done within the last 12m'. I have a history of low D, low B12 & needed 3 x iron transfusions last year. My results showed 2 x calcium levels, plain calcium & 'corrected calcium' both of which seem to be in the mid-range so OK.

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