@Fantasea
Thank goodness the ascites has never returned, that must be such a relief.
@TopOfTheCliff
I also constantly drop things - food I'm getting out of the fridge, my bag, keys, papers, you name it. Is this a consequence of chemo? - Any connection to peripheral neuropathy (which I do have)?
@Fantasea
Your memory issues sound similar to mine; I feel sort of brain damaged. My oncologist has referred me to a course for people with this, it'll start after I finish treatment in September.
A MacMillan phone line nurse told me 2 weeks after chemo ends it's be fine again, but I am 7 months on post chemo now and still deep in brain fogged cognitive impairment that started on Epirubicin and Cyclophosphamide chemos.
@MagicVanillaBeans
I completely understand how waiting is unbearable.
The waiting at the beginning almost gave me a breakdown. I knew mid May I had cancer, was referred on the 2WW but wasn't given an appt till 20 June.
I cried on the phone to PALS and then got a cancellation, but only after I had emailed and phoned the hospital multiple times etc so in the end my wait till first breast clinic appt was 18 days after referral.
After waiting 18 days for the appointment, then I had another 3 weeks till the biopsy. Then waited again till chemo.
This was a stage 3, high grade cancer and my original prognosis was poor (revised following chemo). The NHS is breaking its promises and waiting times are a disgrace.
During the 2 months waiting, I felt the cancer spread to above my collarbone. It also showed up on the CT as being there, but I only felt it there about a month before treatment started, so several weeks after my referral.
Good luck, once you finally get your appointment, full diagnosis and treatment plan at least you feel you're doing something about it rather than being tortured in limbo waiting. If it turns out you don't have cancer, then all the better!!!
@FlorenceOrTheMachine
welcome to the thread, lovely to 'meet' you. The condition you have sounds tiring and stressful, I really hope your hospital team are efficient and caring.
@LemonDrizzle10
You get Kit Kats at chemo??? Wow, you get the upgraded biscuit selection evidently! No choccy ones where I go. But the nurses are so sweet, you never have to go home hungry that's for sure, there are always sandwiches, crisps and biscuits on offer (just not chocolately ones).
@LarryStylinson
great news! Thanks for letting us know.
@lucysmam
I can't believe they let you suffer so long with ascites and it was even making your feet and legs balloon up. That is so awful and I'm so sorry you suffered like that. How on earth could they leave you like that???? Thank goodness they finally did something. xxx
Yes, seroma was uncomfortable, but it was mostly the psychological side that affected me: I was terribly anxious it was never going to stop. It filled up with pints full within hours of being drained each week, and time was going and delaying my radiotherapy. It was very noticeable too because that boob (that was theoretically supposed to be flat post mastectomy) was double the size of my other 34 DD normal breast. It did finally stop after about 2 months.
There's something so scary about the body doing something that feels out of control isn't there. All the hospital could do was drain it and tell me to stop all exercise, so I became a couch potato. They said people who've had chemo are more likely to get it than people who haven't, and my surgery came after chemo.