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Original poster

Does anyone's child have coeliac disease?

12 replies

yurt1 · 18/02/2008 20:51

I've made an appointment for ds3 at the docs next week. BUt how soon does it show after starting on gluten- although he's 3 he only started eating gluten in about Nov/Dec. Also I'm a bit unclear on the symptoms for children. He seems to have very loose greasy and/or pale stools.....

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littlelapin · 18/02/2008 20:58

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Message withdrawn at poster's request.

Original poster
yurt1 · 18/02/2008 21:00

oh gosh that does sound severe. Presumably she had severe failure to thrive.

DS3 is very much thriving (he's porky). I'm not sure whether he would need to have gluten for longer to test.

OP posts:
bramblebooks · 18/02/2008 22:04

not my child (who is diabetic and there is a link there, apparently), but my DH who 'presented' with it when he was 40

we wondered if my boy had it last year, as he was classic 'failure to thrive' - not growing or putting on weight, pale bulky poo - tmi I know, but it seemed to add up. They think it was the diabetes 'lurking'.

Hope you get the answers you need.

dressedupnowheretogo · 18/02/2008 22:19

my dn's have coeliacs as does my exh and sister and i would say almost definate thats what your son has from what you have decsribed do not be fobbed off

Original poster
yurt1 · 18/02/2008 22:37

oh the diabetes is interesting too. As very strong paternal link to diabetes -and like autism - which is in our family, and the reason for the gluten free diet until 3- can be triggered by gluten apparently if you have a leaky gut (which ds3 does).

thanks dressedup as well. I'll push for tests.....

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Tiggiwinkle · 18/02/2008 22:43

Two of my DSs are coeliac Yurt. DS5 was just diagnosed in December. (He also has Asperger's). He was referred largely because he passed blood occasionally-he tended to have alternate loose stools and constipation. I had had him tested when my eldest DS was diagnosed coeliac 3 years ago and at that time he was negative. This time the bood test came back positive and the bipsy confirmed it.
The difference in him since he has been on the gluten free diet is amazing-and he has only been on it for 2 months! Of course his limited diet as a result of his AS meant most of his diet pre-diagnosis was exactly what he should not have been eating-cereal and pasta!
He has put on weight; grown taller and has noticably more energy. The most interesting change is improvement in his AS symptoms-the teachers have remarked on how much more commuicative he has been, for instance. He ahs also been much different at home. With both DSs the main symptoms were poor weight gain, ;ack of energy and lethargy. DS1 also suffered aneamia on and off before he was diagnosed.

Original poster
yurt1 · 18/02/2008 22:47

oh that's interesting as well as ds3 passes blood. I'll mention that.

DS1 has been gf since he was 2 - although has done the constipation/diarrhoea stuff off and on, so I've tended to think of ds3's symptoms in terms of autism/leaky gut. And I've tended to look for headbanging etc rather than physical stuff.

DS3 did really well when we switched from cows to goats milk (went from not passing the CHAT to passing the CHAT in about 10 days).

I'm guessing I should keep him on gluten for now so he can be tested.

OP posts:
Original poster
yurt1 · 18/02/2008 22:47

oh that's interesting as well as ds3 passes blood. I'll mention that.

DS1 has been gf since he was 2 - although has done the constipation/diarrhoea stuff off and on, so I've tended to think of ds3's symptoms in terms of autism/leaky gut. And I've tended to look for headbanging etc rather than physical stuff.

DS3 did really well when we switched from cows to goats milk (went from not passing the CHAT to passing the CHAT in about 10 days).

I'm guessing I should keep him on gluten for now so he can be tested.

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Tiggiwinkle · 18/02/2008 22:58

Yes I would definitely keep him on until he is tested. I think it has to be for about 3 months for the tests to be accurate-I may be wrong though.

Spidermama · 18/02/2008 22:59

My son is T1 diabetic and I wondered about coeliac with him. He'd been off gluten and they told me to put him back on for three months so they could test. The test came back negative.

He used to react to dairy but seems to have grown out of it, if that's possible.

These auto immune things are linked. I sometimes wonder if he developed T1 diabetes because I took him off dairy and wheat and his immune cells had nothing to do so they turned their attention onto attacking his pancreas. Possible a wild theory born of the need to feel guilt.

morocco · 18/02/2008 23:05

spidermama, with you on that mummy guilt trip thing, ds1 has another auto immune condition and I'm currently spending my free time wondering if he also has coeliac and if that is what triggered the kidney stuff in the first place. what is it with mums /guilt/ personal responbility for the world?

Original poster
yurt1 · 18/02/2008 23:06

ah well no spider- because according to the papers I've read that should have protected against T1 diabetes......

3 months- OK will keep feeding him sandwiches (which he loves )

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