I would appreciate any advice you can offer re my dd.
She is 18 and for context, she has a really healthy varied diet, is a rugby player and did regular HIIT type gym sessions. 2 years ago she started with generalised fatigue, low energy levels, needing to sleep during the day. No obvious trigger. All her bloods came back within normal range. No action taken
Since then, over the past 12 months there has bee a gradual deterioration in the fatigue. She gets episodes of acute fatigue if she exercises too hard (nothing like the level of fitness she was 2 years ago). This will involve a feeling of no energy (she describes it as feeling the energy drain from her while exercising) for several hours or a couple of days, really cold hands and feet and hunger++
Concentration is affected too. She finds she is only able to study for very short periods until she feels she needs to rest.
GP has done bloods again & prescribed vit D (her level is well above the adult threshold but just below that for children)
Her B12 is 230 (down from 240 in 2021) Both seem on the low side to me, but in "normal" range
TSH is 4.3 (up from 2.2 in 2021) Again "normal" range but some of her symptoms sound like hypothyroid
Creatinine flagged as raised but GP says not to worry
Could this be an auto immune thing or thyroid or something else altogether??
Went to GP this morning & she has been referred to the local CFS/ME service. Her older brother has ME which presented in a different way (he had more severe physical illness initially). I feel that her blood results warrant further investigation as I don't want her to be given a CFS diagnosis if there are other things that could be done and really want to know if there is some familial link. In short we felt fobbed off & not properly listened to. The GP asked lots of questions about stress and triggers which I felt was just trying to suggest it is stress related which I'm sure it's not. She is very well motivated and still exercises but paces herself & avoids letting her heart rate get too high which helps to manage the fatigue
Ds saw a fantastic endocrinologist privately but she now requires a GP referral which will definitely not be forthcoming at the moment. I am an HCP working in the NHS and am loathe to go private again, but feel that the NHS doesn't do justice to these type of conditions.
Any advice??