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Epilepsy/Fear of dying and leaving my children behind

1 reply

CM1897 · 08/05/2023 22:37

I have had epilepsy for roughly 10 years now and it still isn’t controlled. I had a tonic colonic seizure (convulsions) this evening, which was really upsetting for my 16 year old, 12 year old, and 3 year old to witness. I suddenly had this thought about how my children would cope if I died from one of my seizures (or from anything really). It’s really upsetting to think of a time where I can’t be there for them. Does anyone else ever feel this way? How do you handle these feelings? It feels really overwhelming tonight

OP posts:
WTF475878237NC · 09/05/2023 05:39

I don't have a health condition but I have experienced sudden loss. So I worry about it happening to my children too. The only thing that helps me is to do things to prepare - I found some peace writing them letters to read in the future should anything happen to me for instance. Also living in the moment and enjoying our time together as much as I can.

I hope you feel better soon.

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