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Original poster

Positive stories about bladder cancer in the elderly please

23 replies

Magic1231 · 06/05/2023 20:44

Hi, my 77 year old dad has recently been diagnosed with bladder cancer, he'd been having blood in his urine for a while but hiding it. We have no idea of the grade and stage ect yet, he has and MRI coming up along with another cystoscopy. I'm obviously so worried. Just wondering whos been through anything similar xxx

OP posts:

Pixiesfan · 06/05/2023 21:05

Hi OP my DMIL had bladder cancer and lived with it for many years before she died of unrelated issues. Similarly my friend's dad who is still living with it. Sending you

Original poster

Magic1231 · 06/05/2023 21:47

Thankyou lovely. That's great to hear, keeping my fingers crossed xxx

OP posts:

gogohmm · 06/05/2023 21:51

My grandmother had surgery and radiotherapy
She lived another 9 years (yes cancer got her but they couldn't tell us whether it was recurrence or a new condition)

Snoopsnoggysnog · 06/05/2023 21:57

Hi OP my FIL had bladder cancer when he was about 65 so younger than your dad, he was fine after treatment, two years later he had cancer of the oesophagus, he had surgery and he’s still here 10 years later.

EversoDisorganised · 06/05/2023 22:01

My uncle, in his late 80s, has been living with it for many years now and still leads a good life.

Pollywoddles · 06/05/2023 22:16

A friends father lived with it for years and years.

MajesticWhine · 06/05/2023 23:11

My father in law had bladder cancer in his 70s - the treatment was successful and he's now 82.

2023issucky · 06/05/2023 23:26

Dad had bladder cancer last year. All treatments were done and dusted after about 8 weeks. Still struggling a little bit with infections but overall his doing great and cancer hasn't spread. His 80

Original poster

Magic1231 · 07/05/2023 12:14

Thankyou for àll your replies, its very reassuring. I think we hear the C word and immediately think of the worse case xxx

OP posts:

sunsunpleasecomeout · 07/05/2023 19:52

A friend of mine in his 60's had bladder cancer. Not sure of the stage but had surgery and has been fine, that was about 5 years ago.

Oldnproud · 07/05/2023 20:10

My aunt was diagnosed with this many years ago (30 or more), and it has been perfectly manageable. She's in her 80s now and the bladder cancer is the least of her problems.

Original poster

Magic1231 · 08/05/2023 10:21

Thanks again for your responses. Do any of you know the stage ect they were diagnosed at?xxx

OP posts:

EversoDisorganised · 08/05/2023 22:03

No, sorry.

DrMadelineMaxwell · 08/05/2023 22:11

I'm so glad to read so many stories where treatment was sought and was successful.

My own DDad had bladder/penis cancer at age 68 and it was caught late. He nearly died from kidney failure due to a blockage, but that was resolved with a catheter. Sadly, although he had some treatments for his cancer, they didn't work and he died a year later.

2023issucky · 26/07/2023 18:47

2023issucky · 06/05/2023 23:26

Dad had bladder cancer last year. All treatments were done and dusted after about 8 weeks. Still struggling a little bit with infections but overall his doing great and cancer hasn't spread. His 80

Update just to say, they didn't do his maintenance treatments and left him for ages. It's now aggressive and waiting to see if it's spread. Please ensure they don't fob off the treatment plan they are meant to do. 😢

Humanswarm · 14/08/2023 08:06

@2023issucky how are things with you now? Sorry to jump on the thread. My Dad (76) has just been diagnosed. Going for an op to shave the tumours, what's the likely course of action post op? We've heard very little..

2023issucky · 14/08/2023 08:13

Humanswarm · 14/08/2023 08:06

We get his results tomorrow but he is quite poorly and lost loads of weight and very tired.
The first time he had it, was a simple treatment. They gave him a BCG drugs straight into the bladder for a number of weeks. And it was all done and dusted quickly. He had the new tumour removed in June, it's a grade 3 aggressive one. If it hasn't spread its 4 weeks of daily radiotherapy. If it's spread, I have no idea of what they can do, if anything.
Hope your dad is ok

JenniferBarkley · 14/08/2023 08:19

A relative was diagnosed late 70s. They removed the tumour and then did the BCG treatments, all fine, it's been a couple of years now.

A younger acquaintance had her bladder removed because of it which I'm sure was a major adjustment for her but she's well several years on.

Magic12311 · 21/08/2023 11:28

Hiya, it's me that created this post but since my phone broke I can no longer access my previous accounts, so had to create a new one, username much the same though haha.

I'm so deeply sorry for others going through a similar thing, it really is awful seeing loved ones suffer.
So, my dad had a couple of ops to remove the tumour and stones. He's now having TURBT every Wednesday... his cancer is stage 3. Fortunately the effects aren't the same as with chemo and besides sleeping longer he's okay. The thing I think he's finding the worst is having a catheter and (maybe TMI but such is life) it keeps leaking. The nurses just brush it off, but obviously that shouldn't keep happening.

Sending love and hugs xxx

2023issucky · 24/08/2023 00:43

Glad to hear dads doing ok OP. My dads hasn't spread, which is a huge relief. They said best option was to remove the bladder but the surgery is high risk for him. He refused the surgery so is doing the 4 weeks of radiotherapy. Still hasn't started yet, they certainly aren't rushing. It's been 2 months since they removed the cancer tumour, and still another 1.5 weeks till they start the treatment.
They seem very dismissive of him and how his feeling. Very different to how they treated my husband when he was diagnosed with cancer at 32.

LuciaPillson · 24/08/2023 23:21

Hope everyone's Dads that are undergoing treatment are doing ok.

If positive stories are still helpful, my late Dad had stage 3, it's quite a long time ago now. If I'm remembering right, he had surgery, and then BCG. The cancer responded to the treatment, went away and didn't recur. He did go on to get another sort of cancer but not related and even that he survived for a good long while.

Humanswarm · 29/08/2023 15:57

Hi All, so sorry everyone's had to go through this. Good to hear the positive outcomes for some!
Dad had his TBURT on the 18th. Then had BCG. He has to go back for another TBURT in 4 weeks.
He's very very confused, and the hospital that did the procedure is over 2 hours from us. We had to drop him off the day before, and on admission, I talked everything through with the nurse and explained that, whilst I couldn't be there, Dad doesn't really have the capacity anymore to understand anything, so could I be called with updates.
Dad was discharged on the Saturday and when we went to pick him up there was no one available to talk to. Only the nurse who couldn't answer any questions. So we know he has to have the same procedure in 4 weeks and that's it. Not what stage he's at, nothing. I have called the consultants secretary and he's on leave. Dad doesn't even remember he has got cancer now. Which may be a blessing for him..

enchantedsquirrelwood · 30/08/2023 17:24

MIL had bladder cancer in her early 70s. Had radiotherapy and it went away.

She eventually died at 94 of old age.

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