Malone-Lee clinic for chronic UTI?

[Cherryann]

After really helpful responses to another thread I’m thinking about making an appointment with the Malone-Lee clinic in London for chronic UTI.

Has anyone had experience with them? Would you recommend them? Or a different practitioner? There are a few others in London, & one in Staffordshire, listed on the chronicutiinfo.com website.

Any advice would be much appreciated - this pain is miserable.

If you join the embedded/chronic uti support group on Facebook, there will be lots of people on there who have seen them/are in treatment. They definitely helped me I have come off the antibiotics and am due to reduce my hiprex with a view to coming off it in a month's time.

I suffered for years with UTIs and spent a fortune on supplements to no avail. I've been under Harley St for 18 mins, I see Mathew Malone Lee. I'm now off the antibiotics and just take Hiprex. It's absolutely worth the money. My GP is happy to sign off my prescriptions as NHS, but I know some people have to pay for probate prescriptions. Even so, I think it's still worth doing if you van afford it. They can also refer you in to the LUTS clinic if paying privately is an issue.

Find the embedded UTI group on Facebook, there's loads of information in it.

Thank you both so much. I have been round the houses recently with drs and the prospect of help is such a relief.

I’m at the Staffordshire clinic OP. I would definitely recommend her. The treatment gave me my life back after suffering really badly for a year. I do have flare ups now and again which require antibiotics but the doctor is very understanding and sympathetic. I’d also recommend the chronic uti group on Facebook, there’s some really useful
info on there. I’m currently on Hiprex only which I think is an antibacterial medication.

I’ve had two years of ? Interstitial Cystitis. I also had it 12 years ago when it was successfully dealt with by a Urogynaecologist: I was prescribed
Vagifem
Pre-gabelin
Kegel exercises
and followed IC diet to the letter.
I was ok after a year.
Now I’m post menopausal. I saw Dr Keng Jin Ing (urologist) in Harley Street. There are many good things to say about him. But he’s very expensive and I couldn’t have done it without private health His treatment is multiple but relies on bladder instillations. He’s also one of the few doctors in the UK who offer Uromune.
I’ve had a very difficult journey and feel that maybe it was only after he prescribed 6 months of low grade antibiotics that I got a bit better.
But flares have returned (going back on Uromune later this autumn. Maybe it helped me more than I realised?
I also take Intrarosa (vaginal) am back to Vagifem every other night, and also oral HRT and gel.
i am about to see (face to face) a consultant at the Mallone Lee place.
One excellent reason is their lab - the urine catch is fresh and they can see everything, which isn’t the case with ordinary labs, as there’s a gap of many hours. I had a zoom a few weeks ago and was sent two boxes of Nitrofurantoin.
I just want this whole cycle to leave me alone.
Do take D Mannose. Daily.
Cysticlean 240mg PAC (recommended by Mr Ing) Daily.
Get your GP to prescribe Methenamine Hippurate. It’s a urinary antiseptic and has been around for ever. I know the Mallone Lee people like it.
and do follow the IC diet. Lots of fluid. Wait until bladder is full before you empty : to encourage flushing out of bacteria.
hope some of this may help you.

@VioletCharlotte Hey, how are you doing now? I am currently under the late Prof JML's team. I've been on the long-term antibiotics for a week now, but still getting intermittent burning pain etc. Is that normal? :/ Just trying to see what other people's experiences are. It's so hard to distinguish between that "acute" UTI feeling now and the lingering effects.