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Telescopic Bowel

5 replies

sundayneptune · 27/04/2023 21:18

I had a barium enema last week and was told I have a telescopic bowel (intussusception) - I wasn't given any further information but told that the referring dr would be in touch to discuss. Everything I can find on Google says it's either in babies or in adults is most likely due to cancer. Has anyone else got this, or know a bit more what it means?

OP posts:
sundayneptune · 28/04/2023 21:41

Anyone?

OP posts:
DrinkingAllTheGin · 28/04/2023 21:44

My SIL had this a little over a year ago. Hers was possibly caused by cancer. It was caught very early and she is completely cancer free now
I can tell you some of her journey but I'm no expert and your treatment may well be different as by tge time she was diagnosed, she was kept in hospital until treatment.

sundayneptune · 28/04/2023 21:45

So glad to hear she's doing well -
Yes please if you could, apparently it's quite rare which is probably why I'm struggling to find any information!

OP posts:
Canistilllightafire · 28/04/2023 21:51

I have been told I have one. In my case it's not cancer related and was found during investigation for another problem.

Mine doesn't cause much of an issue but think it explains the rare times when I get really bad abdominal pain that eventually eases once I've been able to poop.

They investigated as part of work up for bowel surgery that I decided against in the end. I wasn't advised I needed any treatment for the intussusception itself but it would have influenced the other surgery I was planning to have.

DrinkingAllTheGin · 28/04/2023 21:55

OK.
I don't know if all treatment is the same. Please don't assume this is what yours will be.
SIL had crippling bowel pain for months and when finally taken to hospital for colonoscopy the discovered the intercerception.
They resected the area effected (large intestine, about the length of A4 paper) and fitted her with a stoma.
She was in hospital for less than a week post op. And recovered at home.
The stoma was done as an emergency so not 8n the ideal place. However she coped fantastically. It cured the pain and it was only after the resection that they discovered very early cancerous cells. Essentially by taking away a goid portion, the saved her from chemo etc.
A year on she is now reconnected, about 2 months ago, wound all healed and all behind her.
I may not have all the details, the stoma was depressing for her, she hated it, but knew it was necessary.

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