Does this sound like Ehlers-Danlos

[FlibbedyFlobbedyFloo]

I've had all kinds of symptoms, seemingly not related to each other, for a long time now.

Gastrointestinal problems
Joint pain
Aching muscles
Fatigue
Awful stretch marks - just from growing as a teen
Raynauds

I have very bendy finger joints - if I put my hand flat on the table, I can get my fingers up to vertical. Also, I can bend my thumb back to my arm and I can touch my tongue to my nose.

I was already starting to suspect EDS

The cherry on the cake is that I recently had a gastroscopy under sedation and since then my jaw keeps dislocating.

Could this be EDS?

It sounds quite likely with those symptoms, but I’m not a medical professional so don’t want to lead you down the wrong path! I was diagnosed with Ehlers Danlos by an NHS rheumatologist so that could be a good next step for you. Especially as being diagnosed can make it easier to access physiotherapy which can help with the joint/muscle pain and dislocations, and for someone to help with the jaw issues you’re having. That sounds really painful! (And I think it’s not uncommon for people with ehlers danlos to have TMJ issues)

I think it’s definitely worth bringing all this up with your GP to get a referral.

It most definitely sounds like it it. I have Hypermobile EDS and have all of the above symptoms...even down to the dislocating jaw thanks to a gastroscopy! I can't even eat a baguette without the ride side of my jaw socket popping out. I've also got quite a few issues with my teeth/gums, which is again linked.

Definitely ask your GP for a referral to get a definitive diagnosis, more so to check for secondary issues like POTS, which is also quite common in people with EDS.

Have a look at the beighton score and assessment criteria for EDS.

Yes it sounds like it could be.

Sounds familiar to me... but diagnosis is a nightmare

Since they revised the criteria they only diagnose EDS if there's is clear cardiac/vascular involvement, it's it's Joint Hypermobility Sydrome.

I have all yours plus vaginal/rectal propose, prolapsed discs and chronic migraine but 'still' only given a JHS diagnosis.

So, just to update you. Rhumatologist apppointment was yesterday.
Beighton score 7/9, so Joint Hypermobility Syndrome.
I have to get my heart checked by a cardiologist now, including an ultrasound