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Do you recognise these symptoms?

28 replies

Askil · 19/04/2023 12:28

I had a diagnosis of fibromyalgia 4 yrs ago and it is well managed through exercise and Pilates and Yoga.
last yr, after a lovely day & whilst watching TV, I suddenly started to feel awfully chilly from deep inside spreading all over outwards. I started violently shivering (teeth chattering) which Paracetamol couldn't touch. The central heating was on.

I took to bed as by now i was aching all over, flu like aching not the usual fibro ache which i can distinguish. Whilst i was shivering in bed and i kept having this uncontrollable urge to stretch my legs and arms.
DH made me a cup of tea which i managed to sip. Gradually the shivering subsided and i fell asleep. When i woke up in the night, it felt like the 'fever' had broken. I felt clammy & light-headed but all the aching had stopped. I felt like I had just recovered from a terrible fever.

The cause was unknown.

2 Months later another attack happened in exactly the same fashion. It came on suddenly for no reason. I had a very hot cup of tea which calmed the shaking and went to bed. In the morning i felt warm and clammy & light headed as if recovering from a bad fever.

I visited the GP who said they cant do anything as I was not ill when I visited the GP. I was asked to call when I'm actually ill, which I can't as it always happens out of hrs and you can't get through to the GP anyway.

It's happened 3 more times after this with all the same symptoms. During the last attack I had I thought i was going to tear a muscle in my back from the continued stretching of my arms and legs. I was blue-lighted to hospital where i was kept in for the night for observation, but eventually, everything came back normal.

I do not have restless leg syndrome.
It always happens at night, it's never been during the day and mysteriously starts to reduce after a hot drink. After sleep, the fever seems to break and the temperature comes down.
I have not been eating cold things or drinking cold drinks.
I'm not on any medication.
When I've googled, Sepsis comes up but it all seems a bit inconsistent with how the attacks start and go away.

I'm starting to get really anxious and hoping someone might recognise some of these symptoms. Thanks.

OP posts:
Askil · 20/04/2023 18:19

I have got a new thermometer to monitor my temperature.

I don't think it's low blood sugar as i don't seem to have any of those symptoms described on the NHS website. The shivering is fever-type shivering (the type you get with Malaria) unlike the 'jerking' you get with seizures (very familiar with seizures as DSIS had them for 2yrs)).

I have a history of low blood pressure although it has never caused any problems but I'm going to start monitoring that as well.

Thanks all.

OP posts:
3luckystars · 20/04/2023 18:19

Nothing related to these episodes but the restless legs sometimes can be caused by being ‘short of something’ like iron/magnesium if you can get a multivitamin that might help.

Askil · 20/04/2023 18:20

Just to add, not menopause as i had a full hysterectomy some yrs ago, so post menopause (thank fully!).

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