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Botox for SI joint pain

16 replies

OldTinHat · 07/04/2023 09:24

Just wondering if anyone has had botox for SI joint pain?

I've been approved for steroid, botox and anaesthetic injections in my back to try and losen my muscles after 30yrs with an unstable SI. I've had steroid injections in the joint before, which did nothing, but this will be the first time I've had injections in the muscles.

I'm a bit skeptical but would love to hear if anyone has had this done and it was successful.

I have chronic pain syndrome and the idea is that the injections followed by physio will 'fix' the SI joint and then relieve my other symptoms.

I've also had 30yrs of physio to no avail!

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Mirabai · 07/04/2023 09:25

Have seen an osteopath/cranial osteopath?

OldTinHat · 07/04/2023 18:12

I've seen everyone over the past 30yrs!

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Mirabai · 07/04/2023 19:16

I never found physio much use with SI joint problems. But regular cranial osteopathic and conventional osteopathic treatment keeps it all under control.

Personally I would avoid Botox but steroid injections are ok - they need to be in to exactly the right place though which it doesn’t sound like yours have been.

Do they know the cause? Do you have any osteoarthritis, osteoporosis or sacroiliitis? Did you have a lower back injury at some point?

tenbob · 07/04/2023 19:19

I haven’t heard of this but following with interest

The only thing that has helped my SI joint pain was taking up weightlifting- deadlifts especially

Chiropractors and osteos made it a lot worse and possibly (probably) destabilised the joint even more

Years ago, DH had really bad reoccurring ITB issues from running, and had Botox into his ITB which solved it

But it is structurally very different to an SI joint

Mirabai · 07/04/2023 19:23

Chiropractors are far too violent. But cranial osteopathy or very gentle conventional osteopathy is completely different.

Stretching and strengthening is also super important - I did Pilates. Which was much better than conventional physio.

OldTinHat · 07/04/2023 19:49

My SI instability was caused by an accident whilst weight training. I also have a herniated disc and curved spine but it's the SI giving me jip.

I literally have had every treatment possible, everything. I'm left with the option of spinal fusion surgery however botox is a new option not offered before so just wondered if it was worth a go.

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Mirabai · 07/04/2023 20:09

You mean scoliosis?

If you want try Botox try do?

CMOTDibbler · 07/04/2023 20:26

I had therapeutic botox for a different issue, but what it did was relax the massively tight muscle so that intensive physio could help with the overall issue. I had botox three times and then was able to do without it. No side effects, so well worth a trial imo

OldTinHat · 07/04/2023 22:03

No one has mentioned scoliosis. My spine is just curved off to one side slightly apparently. First time it's been mentioned!

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OldTinHat · 07/04/2023 22:05

@CMOTDibbler I think that's what they're aiming to do. And repeat as necessary. As you say and with physio.

That sounds positive!

Are you better for it long term?

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Mossstitch · 07/04/2023 22:06

Presume you have tried the Don tigny techniques for SI dysfunction (there are video's on utube). Mine used to slip out and cause a lot of pain until I was told about these exercises to realign it. If I did them as soon as I felt it go it reduced the amount of pain instantly and along with ibruphren during flare ups I could keep it under control plus swimming to strengthen lower back muscles

OldTinHat · 08/04/2023 08:35

@Mossstitch yes, I do those every time it slips out. A physio taught me the technique about 20yrs ago.

There is literally nothing I've not tried. Seriously. Apart from this suggested botox treatment and then surgical fusion.

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CMOTDibbler · 08/04/2023 09:10

@OldTinHat yes, or at least I can keep on top of it now very easily. My only other option was surgery which would have had other consequences, and the relief after 5 days when it released was amazing so then the physio which just couldn't work before could really kick in to rebalance things

Mirabai · 08/04/2023 10:09

You said “curved” and it wasn’t clear to what extent - could have been kyphosis or scoliosis. 🤨

OldTinHat · 08/04/2023 16:34

@CMOTDibbler Thank you. That sounds so encouraging. I want to avoid surgery too. I'm going to give it a whirl. I had a cc letter this morning from the hospital to my GP saying they'll try it and monitor as to more injections or if surgery will be necessary.

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OldTinHat · 08/04/2023 16:40

@Mirabai apologies, it was the first it's ever been said to me. I know I have a curve in my lower back but the Dr last week said I have a sideways curve down there too. Not been told that before.

Tbh, every time I see someone, I'm told something different. I have SIJ disfunction (thats for sure), herniated disc touching the nerves in my spine, arthritis, chronic pain syndrome...

But anyway, I'll give the botox route a whirl. Nothing to lose I guess.

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