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Exhausted. Fed Up. Where does it end?

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deflatedbirthday · 04/04/2023 20:32

I've posted about my health issues before but I am completely at the end of my tether.

10-15 years of various symptoms. Pain mainly. Periods which lasted 12 weeks at times. Eventually diagnosed with endometriosis on laparoscopy 18 months ago. But the pain did not go away. If anything it's got worse and spread. It has helped the bleeding but that's all.

After many many consultations and changing GP I was diagnosed with fibromyalgia and functional neurological disorder. I have olfactory hallucinations which smell like cigarettes (I was investigated for epilepsy due to this and some really strange instances where I could not speak on waking up).

I am currently awaiting ANA bloods for a potential lupus diagnosis.

I hurt all over. I feel constantly ill. I am absolutely depressed. I cannot sleep due to restless leg pain. Im so tired I cannot function. I have to hold down a job because I was denied PIP so I cannot decrease my hours.

The fatigue is debilitating. The pain is unbearable. It's like toothache under my knees, in my hips, my wrists, my shoulders. At best it is a dull ache. I cannot remember the last time I felt no pain.

I have just started a new medication for the pain. It is working to the extent that when I take it the pain is duller. But the side effects have been awful though I know I have to persevere.

I don't know what the point of this post is. I'm just so worn out. I feel utterly beaten.

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