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To be angry I have epilepsy

6 replies

Iquitforevermore · 14/03/2023 19:22

I feel so silly as I know that there are far worse conditions. I have young dcs and just can't help but feel angry I have this stupid condition (diagnosed in my 30s) Does anybody else?

OP posts:
Whyx · 14/03/2023 19:28

I don't have epilepsy but I do have a chronic health condition. Thankfully it doesn't yet effect me much yet in the day to day but, wow, I am so jealous and angry that there are people out there that have perfect health and I will never know what that's like.

I used to see my life as two half's, before diagnosis and after. Like I had no worries before.

Realistically I know that most people will have some form of health complaint at some point but you get it. It just feels really bloody unfair.

Iquitforevermore · 14/03/2023 19:36

@Whyx that's exactly how I feel. I just see people with perfect health and then feel annoyed I have this. I am incredibly selfish as I know there are far worse things on the world. I also know that you can never tell what is going on in other peoples lives. I have struggled to accept the diagnosis at this time in my life. I feel it has robbed me of precious memories with my young dcs. I wish I could make peace with it but I can't.

OP posts:
Iquitforevermore · 14/03/2023 19:36

in*

OP posts:
BinleyMegaChippy · 14/03/2023 19:45

How bad is your epilepsy? I had a fit at 29 when I was pregnant with my first child. Had a scan and it came back clear, but because I had a second fit a week after she was born, they had to class it as epilepsy and put me on medication that I have to take for the rest of my life now. It's a minimal amount, and (touch wood) I've never had another episode. I could come off the medication, but it would mean not being able to drive for a year and I would worry about having a seizure. I I guess the medication is like a safety blanket for me now. I don't think about it any more it's just routine...take the tablet in the morning and one at night and just carry on as usual.
Hope you're ok. Sending a hug.

MissMarplesNiece · 14/03/2023 20:06

I understand your feelings OP. I don't have epilepsy; I have type 1 diabetes and I'm angry that this illness affects me. I resent waking up in the morning & having to test my glucose & calculate insulin doses before I've even had a first cuppa. I'm angry that there is nothing spontaneous about eating - every carb has to be calculated and insulin injected accordingly.

SmellyNelliey · 14/03/2023 20:18

Op your not alone what type of epilepsy do you have?
I've got generalised epilepsy
Non epileptic attack disorder
Nocturnal seizures & chronic migraines
I'd do anything to have a healthy life.
ive 4 young dc I'd love to be able to drive work and plan things like days out knowing I'll be feeling OK.
I often remind my self things could be worse and I'm lucky to have the life I do.
But I'd love nothing more the a bath alone without somebody in the bathroom with me just in case of a seizure.
I've also gained 28lb since starting keppra! Due to see epileptic nurse to look into different medicines 💊 and hopefully the weight will come off!

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