Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Does your GO care about your under active thyroid?

29 replies

Fiddlersgreen · 28/02/2023 21:09

It feels like I’m pulling teeth trying to get help/answers from my GP.
I was diagnosed with under active thyroid in August and prescribed Levothyroxine 50mg, was told to book a block test for November.
Had blood test in November, the next day I got the standard “your blood test results were normal” text. That was it. I had to call and ask for a telephone appointment to discuss the results so I could know if the medication was working or if dose needed changing etc. I thought it was odd that I had to chase this up myself considering the reason for test was for thyroid update.
Same has happened this time with my latest tests and I have had to chase the GP to ask for my results only to be told I just have low vitamin D and thyroid is currently “normal”.
Does anyone else have this much trouble getting support from the GP for this?

OP posts:
newtb · 06/03/2023 07:27

Also, your vitD levels need to bé higher. I'm in France and hypo. Under 30 is considered really low. You need vitD for your thyroid to have any chance of working.
Like a fair proportion I can't convert T4 to T3, the active form. I take T3. In the UK the suppliers massively increased the price. Following this, the doctors on one of the British thyroid sites stated the conversion problem didn't exist. It was down to women not taking their medication properly.
The about thyroid site in the US is good, including giving names of specialists.
One of the many books I read, may have been Thyroid power, states that a normal dose is 1mcg per pound of body weight.

Btw, I can remember during COVID reading in the paper that thyroxine/iodothyronine is sold otc in Greece.

DogInATent · 06/03/2023 08:29

One of the many books I read, may have been Thyroid power, states that a normal dose is 1mcg per pound of body weight.
The problem with that easy to remember figure is that it overlooks the input from whatever function the thyroid contains. It could only ever apply to those, like myself and other PPs, who have no functional thyroid at all due to medical interventions.

I remain very sceptical of a lot of popular articles/publications on hypo- and hyperthyroidism as many are far too simplistic. I'm extremely sceptical of all those with the premise that thyroid conditions are too complicated for mere medical professionals to understand, but here's my quick fix and all you have to do is this one thing. I know why they do it. Thyroid conditions are extremely frustrating for those of us that have them, and there's a large market desperate for something that will make them feel better.

RosesAndHellebores · 16/09/2023 21:14

The British Thyroid Foundation is very helpful. Check out their website.

I was diagnosed with severe Graves in 1990. It was brought under control and I then had a subtotal thyroidectomy. I refused to consider radioactive iodine as I was shortly to be married and wanted to start a family. I also wanted a speedy resolution.

My consultant explained everything to me. He was very famous, a chap called Sir Richard Bayliss. I was very upset about it.

I have always requested a print out of my results after every blood test.

I took 100mcg u till just post menopause when it was increased to 112.5 at my request.

In over 30 years not one single GP has ever asked how my thyroid symptoms are. Usually they forget the blood test and I ask for it. 56 day prescribing is evidently so they can keep the patient under review. Ha bloody ha! I'd much order 365 tabs annually and to review myself. I can't believe GPs have so much time on their hands that they can faff with unnecessary prescriptions continually. Prescriptions that cost more to raise and dispense than the actual medicine.

It's esse tial patients educate themselves and advocate for themselves.

ShadyPaws · 16/09/2023 21:20

My new GP is excellent
When I changed to them, he asked me to have bloods done and did 21 tests to get a baseline of where I was
Said T3 was very important, and keeping my vitamin D level up too, and increased my levo without blinking as he also said it was off how the patient was feeling and not just numbers

New posts on this thread. Refresh page