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TMJ Disorder?

6 replies

SickickFan · 21/02/2023 23:27

I don’t feel that my symptoms completely fit TMJ disorder, but I could be wrong. I don’t have jaw pain or stiffness, can open my mouth normally, no clicking noises and I can eat normally. What I struggle with is pain in and around the fleshy part of my ear. When I move my jaw, I can feel my ear canal, like it feels tight. There is a tightness and pressure underneath the fleshy part of where my ear meets my head and if I press on it, it’s really tender. I have radiating pain from the top of where my ear is connected to my head, this goes a way up and also into my cheekbone, where it feels like someone is pushing their foot on my head/face. If I smile, the area feels tight, like it’s pulling, same if I turn my head away and this feeling is always there (other symptoms are intermittent).

It started 18 months ago with ear fullness and pain and swelling behind and in front of my ear. I was diagnosed with cellulitis and it took 4 courses of antibiotics to get the swelling under control. Since then, the ear/head/face pain has remained and appears to be getting worse. I do have a history of ear problems and did have an operation on the same ear last summer, but I am being told that this is not connected and that it’s ‘probably’ TMJ disorder (this was by my ENT surgeon) because as far as they are concerned, my ear is healthy (even though I’ve had no tests or examinations to prove this since my operation)?

I have been told by my dentist that I grind my teeth so have a custom hard plastic nightguard that I’ve been wearing now for a year, every night without fail. When I told her that I am getting a pressure feeling in some of my teeth at times (like something is stuck between them), she just told me to wear my nightguard in the mornings too (so no help from her). I’ve also been feeling my top teeth sometimes hit my bottom teeth when talking and eating, which suggests an issue with my jaw but again, my dentist is not interested. I’ve booked in for a TMJ/myofacial massage next week to see if this helps as I am getting desperate now. Could this be TMJ disorder, if you have it are any of your symptoms the same?

OP posts:
DaysofHoney · 21/02/2023 23:39

Yes, very similar symptoms for me on the affected side. TMJ diagnosed at age 16! Some morning I wake up and that part of my ear/head feels like it is on fire. the pain usually passes quickly once I’m up and about.

I had a jaw arthroscopy when I was in my late teens and it helped. I was at least able to open my mouth again! Have you looked into surgery?

SickickFan · 21/02/2023 23:50

@DaysofHoney Thanks for replying. I’ve literally not done anything in respect of it because I’ve been putting it down to the problem with my ear that I had operated on! I haven’t even got an ‘official’ diagnosis, I’m planning on seeing a private dentist as my NHS one is just no help whatsoever, to see what they say (I had to push for a nightguard because she wasn’t even going to help me get one!). In the meantime I’m going to see if the massage helps as I’m getting desperate and don’t really want to take permanent medication like amitriptyline for it (I don’t like the side effects) or surgery at this point.

OP posts:
DaysofHoney · 21/02/2023 23:53

Yes the diagnosis was very hard to get, I went back and forth between consultants and dentists and eventually a maxillafacial consultant sorted me out.

I hope you get some respite from it soon. Mouth guard should help. Is it the type that clips on behind your front teeth?

SickickFan · 22/02/2023 00:02

@DaysofHoney I bet it was, it seems hard to get any kind of help for anything that can’t be ‘seen’, sometimes I think they just put me down as a ‘hysterical woman’ 🙄 Weirdly I am seeing a maxillofacial surgeon this week, a routine check up after he removed my impacted wisdom teeth so I was thinking of asking his advice.

Thank you, it’s driving me mad because it’s always there in some form or another. I’ve been wearing a nightguard for a year now and it’s made no difference to my symptoms or pain unfortunately, but it is like a retainer and I have read that it’s the wrong kind for TMJ pain so I might have to research that…

OP posts:
DaysofHoney · 22/02/2023 00:13

Yes it was my impacted wisdom teeth that led my surgeon to diagnose TMJ too. I wonder if the two things are linked. I am hyper mobile too which I expect makes things worse.

My splint is very small, sits just around the front few teeth. Bit like this one:

DaysofHoney · 22/02/2023 00:27

This type:

TMJ Disorder?
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