Think I’ve got chronic fatigue syndrome - any advice?

[Capricorn8990]

Hi all, bit of background.. I had my first baby in June 2022, she’s slept through the night since 9 weeks old (I count my lucky stars!). I lost over a litre of blood during childbirth and my placenta got stuck so had manual removal. My platelets were low so I was given a dye (can’t remember the name) to help them.

For as long as I can remember I have never slept well. I wake up unrefreshed feeling achy and hungover as if I’ve done a major work out whilst drinking heavily. I have a sore throat most days and generally feel under the weather and stiff. If I go for a walk the following day I am wiped out. I get muscle aches all through my body too and sometimes it hurts to move. My brain fog is awful. I find it hard to explain what I’m trying to say and I’m sluggish when responding to people and slow. I have terrible headaches which lead to migraines, dizzy spells that make me lose balance and nausea to the point where I’m sometimes physically sick at night. I also suffer from horrible night sweats. I am so tired throughout the day that I could fall asleep on the spot but with an 8 month old the show must go on.

I went to the doctors and they did lots of blood tests and it showed I had low vitamin D. I’ve been taking high strength tablets for 6 weeks but they haven’t helped at all.

I am a 29 year old woman who feels like I’ve been struck by a train everyday. It’s getting me down now. I’m slim (about 60kg) and 5ft 4.

Today I felt so awful that I cried. I’ve requested a GP appointment to discuss my concerns further but they’ve given me an appointment for 3 weeks time.

My MIL seems to think it’s just being a new mum and my hormones being everywhere but I don’t think it is. My hormones have levelled out and my periods are stable. I know being a mum is tough but this tiredness is something else.

Has anyone been diagnosed with chronic fatigue and how did they get their diagnosis?

When I speak to the doctor what do I say? Do I tell them that I think I may have chronic fatigue from doing my own research?

Those of u that have got a CFS diagnosis - - always make sure theyve checked your b12 recently

Im hopeful thatb12 injections may improve my situ a little

That sounds so frustrating!

ME CFS should be an exclusion diagnosis, so shouldn't be getting diagnosed until they've ruled out everything else

Have you asked for your ferritin levels to be checked yet? It’s basically your iron bank account.

your haemoglobin levels can be fine and red blood cells fine but ferritin low. Mine is 12 and I feel like death just started supplementing with iron and vit C. Already feel less fatigued after just 2 weeks.

they’ll tell you that anything over 12 is fine but most people feel tired if it’s under 50. You need to specifically ask for FERRITIN levels to be checked. If under 50 then look up the iron protocol group on FB and they’ll help.

@ 12 - surely they could give you iron iv?

When mine was 8 - i had iron iv

@Capricorn8990 Sorry this is still going on, have they ever tested you for antibodies for glandular fever or Lyme disease?

I second this
I had ebv / glandular fever..
Now cfs