Has anyone had experience with Dr Sarah Myhill, Dr Damien Downing or Elliot Overton?

[Mumma02]

Just what the title says! My entire body is shutting down. Have been on a decline since having my second child 3.4 years ago and in desperate need of help to keep surviving.

M.E/CFS symptoms
Small fiber neuropathy with autonomic involvement with no identified cause.

Can't keep waiting for NHS appointments that get me nowhere - while getting worsr as the days go by. Holding down my job and kids is getting too much.

Willing to pay privately but also not a millionaire so needs to be for somebody worthwhile.

I have suffered with iron deficiency issues for some years. It’s so sad that GPs happily allow women to struggle along with this for far too long without sufficient treatment. Last year my ferritin fell to 2, I felt awful. My GP just kept pushing the iron supplements knowing they were exacerbating my awful IBS. Eventually I pleaded for an infusion. My ferritin went up to 53 and I felt fab, more energy than I have ever had. But I feel crap again. During my last GP appointment in O toner last year (I don’t go much as I have little faith in them). I asked what my latest levels were and she said ‘oh your ferritin has fallen to 18 but that’s still a good level, isn’t that fab?’. 🙄

@TheOtherHotstepper I would love an infusion - I can't get anyone to listen! Can I ask what the difference is between primary and secondary hypothyroidism is? I have all the symptoms of this too. :-( I'm glad that you feel well now!

@dizzydizzydizzy
hi may I ask which specialist clinic you were under/used and whether it resolved your issue?

Hi @TheOtherHotstepper please may I ask how you resolved your issue? did you pay for blood tests and then get supplements or something? I'm looking for FMD and saw the issue with Dr Downing expensive costs and not finding things helpful for recovery/improvement from him :/

hi @Mipsie did you manage to find anyone that was actually helpful?

The final sentence here about walking as much as possible and doing yoga is not necessarily good advice. Pacing is essential for ME and exertion from exercise can cause permanent or long term deterioration.

The book Fighting Fatigue by Pemberton is very useful re: pacing technique.

Sutton Hospital which is part of Epsom and St Helier Hospitals.

www.epsom-sthelier.nhs.uk/new-myalgic-encephalomyelitischronic-fatigue-syndrome-mecfs

All the appointments were online so you don’t need to live nearby. Good luck!