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Floppy heart valve - can anyone help?

3 replies

Rhutdvhf · 10/02/2023 14:41

Before Christmas my DM went to the doctors for a chest infection. The chest infection cleared up but the doctor told her it sounded like there was a valve in her heart flapping and sent her for a scan. She said if that was the case then she’d need an operation.

My DM went for the scan on Monday, and the doctor rang her and said that it was floppy and she’d need an operation.

Today she has received a letter from the cardiologist asking her to go to an appointment on 26th March.

Obviously we’re terrified. I can’t eat and feel sick all of the time. The GP only rang my DM rather than seeing her face to face, and said she couldn’t really answer any questions because she wasn’t an expert. It says online that many people don’t need an operation for this condition. Will the GP definitely know she will need one, or could she just be assuming so? It seems so wrong to leave us all scared and confused until 26th March with no real idea what is going on.

OP posts:
Rhutdvhf · 10/02/2023 18:14

Hopeful bump.

OP posts:
NK346f2849X127d8bca260 · 12/02/2023 17:56

I have a Mitral valve prolapse that has been referred to as floppy. You can get a heart murmur with valves defect so I am thinking GP probably heard one.

monkeyted · 12/02/2023 21:06

My DM had a mitral valve prolapse, not sure if it’s exactly the same thing but essentially it was a floppy valve. She did have an operation to fix it. My understanding is there’s a whole range of possibilities of how it might need to be addressed, from no op just medication and monitoring, to key hole surgery, up to open heart surgery (which DM had). I know it all sounds scary whilst waiting and not knowing, but hopefully the appointment will provide reassurance and answers.

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