So worried

[pleasemindyourmanners]

My DH has the following symptoms:
Pain in abdomen
Pain in back
Tingling sensation in one hand
Numbness that comes and goes in his legs
Urge incontinence
Huge lump on his lymph nodes
Unsteady on his feet
Really tired.
This has all come on suddenly but neither GP nor A&E are very interested in figuring out the cause.
If he doesn't move at all, most of the symptoms ease. However, even in getting to his work and sitting at a desk has brought them on again.
He has been given tablets for an overactive bladder. And told he should just accept it is an age thing. He is only early 40s. Slim, active, non smoker. He surely can't seriously be expected to become housebound without even investigating what is going on.

He's he has any investigations?

I went to the GP with just two of those symptoms (unsteady on my feet and constant fatigue) plus poor sleep, and he immediately gave me a thorough prodding all over and sent me for a handful of blood tests, a faecal test. He also sent me to a physio for further assessment. I know one thing they were looking at was to check for some deficiencies that can cause neurological problems.

How's his walking?

Some of those symptoms point to a neurological condition called hereditary spastic paraplegia.

It's rare and not likely but definitely it points to something that could be neurological in basis

We phoned out of hours on Saturday. They sent him to A&E. They ruled out a urine infection and told him to see his gp. He was also given the overactive bladder tablets.
Numbness got worse in legs on Sunday so back to A&E. They said it was a GP matter. No examination.
Saw GP on Monday who examined him and said would refer to urology.
He thought it was maybe easing. But had literally been doing nothing.
Today he tried to do a bit more. His job is office based but he does need to get from car park to desk. I drove him. Then he felt bad again so we spoke to GP again. Today he checked reflexes and said this could be long term and neurological but didn't refer him to anyway. Just told him to double the tablets.
It is such a massive change in DH and no-one medical seems to be that bothered.

He is shuffling instead of his normal walking. And trying not to walk far.

Hoping, more people will see this.
Tonight, he managed round the block. We had only got to next door's driveway when he started to feel uncomfortable. He was doubled over in pain after about 3 minutes and we headed back.
His muscles in his lower back all seem to be in spasm.
Doctor saying it is probably nothing serious. But surely he can't be expected to just put up with this and not know what is wrong. He is effectively stuck in the house, unable to do much.

We are just not sure what to do next. DH felt like the hospital made him out to be overreacting. GP said he was a mystery. We feel like he has been just left to suffer. None of the medical professionals seem to be very concerned about that he is quite suddenly incontinent and not able to leave the house.

Does his work have occupational health?
Private medical insurance?
Go back to gp

He has Bupa and we think it might cover a private GP. We have never used that bit of cover before but I think we might have to.

I am so sorry OP, get back to the GP as a matter of urgency and go with him. Stress all this. A&E in some places are pretty thorough in other cases unless you are physically having a heart attack at that moment or struggling with a diabetic coma have in my opinion decided to not take much action as they see it as 'diagnostic' rather than A&E - which is all very well if your GO takes it seriously and can get you in quickly for appropriate tests