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Potential IBD or something else?

1 reply

dogmama1 · 01/02/2023 19:11

I've been suffering with daily diarrhoea for over 13 months, I've been back and forth to my GP surgery many times and every time they've dismissed me with IBS.

However, for the last 6 months, I have what I can only describe as what feels like a mass/balloon in my lower right abdomen. It causes me great pain, the pain radiates into my hip (to the point my hip feels swollen but doesn't visibly look so) sometimes the pain makes me double over, it's almost as if it's rubbing against my stomach and causes pain or is pinching. I've been to my GP several times, they've felt around and came back with several different explanations .... hernia, gallstones, back pain??? None of which I agree with. When pressed it noticeably makes a squelching sound.
I've had bloods done, which showed easier white blood cells, monocytes, Haemoglobin and neutrophils was all raised, they brushed it off saying if I had an infection my CPR would be raised.
I've been weighed and have dropped from 9'12 in sept of last year, to 8 stone 4 in the start of January. Despite no diet changes or gym memberships. I'm physically exhausted, to the point it brings me to tears.
I had a stool test done, which I never heard back from, when brought up at my last appointment she looked and said, 'yes I can see it says loose stools but the infections probably gone now'?? No follow up.
I've now changed doctors surgery, as I feel as though they are completely dismissing me. When I mentioned IBD, she actually laughed and said I'd be bleeding a-lot from my bum if that was the case. Although the nhs site says otherwise, whilst it's a symptom it isn't the definitive symptom.
Despite my cousin recently being diagnosed with chrones disease and a long history of digestive issue within the family.
I have an appointment at my new surgery tomorrow so hoping they actually hear me...
my previous surgery did refer me for a scan, after I really really pushed (still waiting 4 weeks on)
I've almost taken myself to A&E several times between Christmas and now as I'm terrified. But have held off because of the strikes and long wait times (the thought of sitting on a hard chair for 16 hours feeling how I do at the moment makes me want to cry)
I have zero energy, I'm cold to the point of shivering virtually all the time, I look pale and gaunt, I have mottled skin on my upper thighs.

Anyone experienced anything like this with IBD? It started initially with just constant diarrhoea which I visited the Gp about last July, they brushed it off as ibs with no test. This mass feeling has since developed and I'm so scared they've ignored me for so long I've now got severe damage in there. I know this isn't the place for a diagnosis, but it's a outreach to people who may have experience similar or had the same and may be able to offer impartial advice or guidance.

Thank you.

OP posts:
lennonj · 01/02/2023 19:50

You need a stool test which treats your faecal calprotectin. If you Google this you’ll get some ideas of measurements that may intake whether it could be IBD or not.

But really from your symptoms as a whole you need a referral to gastro. I hope you have a positive appointment and feel listened to and all symptoms fully investigated.

i do have IBD but I did have bleeding as one of my first symptoms, but I see on a Facebook group for IBD that many don’t have bleeding.

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