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Recovering after 3 weeks in hospital

17 replies

VeryLittleOwl · 20/01/2023 19:32

How long does it take to start feeling remotely normal again? Came home yesterday after 3 weeks in hospital, including five days on a high dependency unit, after coming down with acute pancreatitis. I'm normally pretty fit and active - I have sheep, horses and dogs to look after - but I'm shocked at how little I can do at the moment. Having a shower knackers me and going up stairs is a real challenge (down is a lot easier for some reason).

I read something that said you should reckon on a week's recovery for every day spent in hospital, is it really going to take five months to get back to my old self??

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Alphabet1spaghetti2 · 20/01/2023 19:39

I’ve heard that saying too. Ime, give yourself a week or so to adjust being back home in a very basic ‘necessary to live’ routine, then start adding in other chores one at a time. I feel the saying is more of a version to take it easy and ease back into routine rather than charging headlong back into the swing of things and putting yourself back to square one or worse.
Rexovery may be slow to start, but get quicker later on, as you start to properly recover. Accept any help you can and don’t over estimate you can do, small wins now will make you feel better than that first shower at home!!

LadyKenya · 20/01/2023 19:44

You have been through the mill. Be kind to yourself, and try not to do too much. It is important to listen to your body. Accept all the help that you can get. Looking after horses sounds quite physical. Take time to heal.

VeryLittleOwl · 20/01/2023 19:56

Thanks. DH has been a superstar and done everything while I'm away, with a bit of help from some of our lovely neighbours, but it's so frustrating not to be able to help him!

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changedmynam · 20/01/2023 22:42

I had 12 nights over 5 admissions in hospital between Augaust and Octover.

and TBH for quite a few of the days when i was at home I was so poorly I probably should have been in hospital too, i just didnt want to go back.

During this time I had 2 operations.

Only now, nearly 3 months / 12 weeks later am I starting to feel like the old me again.

Be kind to yourself and give your self time to heal

TotallyWhatever · 20/01/2023 22:44

Pancreatitis is awful. It may take you 4-6 months to feel your old self again, but you should feel gradually better week by week. Dont over do it or you’ll just hinder your recovery. Good luck and look after yourself

SidneyBristow · 21/01/2023 23:13

I can relate. I was discharged a week ago, after 3 weeks in hospital being treated for sepsis due to invasive strep a. I was so desperate to get home to my family. Yet mostly all I’m capable of is showering, eating lunch then napping for 3-4 hours. Previously I was a very busy person…now, I watch. I know things will improve for us both but this recovery business isn’t easy, in any way.

pippapipps · 22/01/2023 00:51

Hi op I am relate I was in hospital for three weeks in the winter of 2020 with sepsis and it took me about seven months to be back to me again
In those seven recovery months after I had zero energy I was tired all the time I just wasn't able to do what I did before
It's like I had been drained of all energy and life
Take it easy don't push yourself

VeryLittleOwl · 22/01/2023 09:15

Thanks - gorgeous sunny morning up here and DH has just taken the dogs out into the fields for a bounce, so frustrating not to be able to go with him. I'm going to see if he'll agree to help me onto the back of the quad bike and drive me to the field where my horses are this afternoon, I haven't seen them for nearly a month now. I'm seeing little improvements every day, but the temptation is to push for more and I know that's probably the worst thing I could do right now.

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Hunnypieprank · 23/01/2023 14:04

Omg 3 week s. In hospital wow. Did you feel.sick before admittence. so my story is . That about 15 years ago and prior to that I was feeling really awful. Finally I sought medical help and was diagnosed with moderate to severe acute pancreatitis.

Not technically admitted to ICU as they had no space. Spent about 2.5 weeks. And a follow up with gallbladder surgery later on . It took at least a year to get back to normal and I had no kids or work so I really focused on my recovery. I lost my a chunk of my hair I was exhausted and I benefited from a tonic.

So about 2 years ago I felt poorly again and this time I went straight to my drs for medical evaluation. And nothing was found and again blood results were normal. I began to think that because I have anxiety it was related to acid influx or something else.

6 months ago I felt awful and I had no signs of acute pancreatitis. No fevers no sweats no shivers just a slight pain after eating. And I was diagnosed with it again for the second

time.vspend a week in hospital due to a blocked bile stone formation. And I was exhausted and it's now a good 6 months later that I felt my energy level rising. So relax and don't push yourself

CopperMaran · 23/01/2023 14:30

Rest in a really undervalued but important part of healing. Rest, rest and rest. Well done - You’ve done a fabulous job coping so far. Hang in there. You may find you need space for an emotional reaction to it all down the line too. Take care.

snowsilver · 23/01/2023 16:11

I had 8 days in hospital with covid in 2021. On discharge I could barely walk and had to sleep downstairs. It took 2 months to feel normal and 3 months to regain my former fitness.
My best tip is to compare how you feel with a week ago rather than yesterday. Easier to see progress.

VeryLittleOwl · 23/01/2023 20:56

Thanks for all the advice everyone, I'm feeling a bit less useless now :)

Hunnypieprank - I'd been having slightly strange muscle aches and pains for a while, but because I'm 47 and have been having a few perimenopause symptoms, I wrote it off as just another one. Then it got much, much worse one evening to the point where I was throwing up with the pain, saw my GP at about 5.30pm who said he thought it might be my gallbladder, gave me an injection of buscopan to try and relieve the pain, but said if it hadn't worked in about 40 minutes to head east to our nearest A&E, which is about an hour away (I live in a remote part of the Highlands). Got admitted to hospital and put on morphine at 10pm that night, the next day they decided I was too ill for them to handle and sent me on a two-and-a-half hour transfer in an ambulance to the main hospital for the Highlands in Inverness, where I got put straight into the high dependency unit. I don't remember very much about it, but they told me afterwards it was pretty touch and go for the first couple of days - I remember my hands, face and feet being permanently pins and needles, my blood pressure being so low they put an arterial line in to monitor it constantly, they were worried my heart was going to stop, and at one point my brain started randomly processing everything from my right eye at 90 degrees to the left eye.

I don't drink, so as I slowly got better there was a 2-week argument over whether a small 2mm blob they could see on the ultrasound and CT was a polyp or a gallstone. I went onto nil by mouth twice in anticipation of having my gallbladder out, only for it to get cancelled because someone thought to ask me if my stomach was usually the size it was and on finding out that I was about four dress sizes up from normal decided to delay until the full gastric team was in and then my consultant cancelled it completely on the grounds that keyhole surgery on someone with that much abdominal fluid (it had gone down - when I arrived there was so much that there wasn't space for my lungs to inflate fully) invariably got extremely messy and ordered an MRI scan and another CT instead. The scans showed I definitely had a polyp and no sign of any gallstones, nor had my pancreas necrotised or grown an abscess, both of which they were worried about because my platelet count was still sky high. The cause has been put down to a ridiculously high triglyceride count - normal is 2.7, very high is 5, mine was 55...my blood was so full of fat that they couldn't do a lot of the normal tests on it! When I'm better they want me to go and have some testing to try and figure out why, there's a gene mutation that can cause this apparently and they want to see if I have it.

CopperMaran - thank you, I was seeing a very good counsellor early last year for some issues I wanted to deal with and I'm seriously considering booking a catch-up session with her to talk about all this. I think I'm okay, but it's all still a bit recent and I suspect it may whack me in the chops a bit further down the line.

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FlopFit · 24/01/2023 09:45

dp was in hospital for acute pancreatitis a few years ago and it definitely took him a few months to recover. They didn't find a definite cause for him so unfortunately he got some recurrences which were hugely painful but he refused to go back into hospital! Hopefully with a cause for yours, they will sort it out so it doesn't happen again.

paintitallover · 24/01/2023 10:29

What an awful story @VeryLittleOwl . I hope you make a full recovery soon Flowers

Hunnypieprank · 06/02/2023 16:12

That absolutely sounds horrendous op. You have really been through the mill. I was watching a radon show last week taped. A they were talking about health concerns and mentioned that about pancreatitis being a critically illness. And about necro pancreas. Well it made me feel sick. And to think how lucky I am and thank god that I still here today. I have issues with burping and constipation at the moment.
I remember a week after I was discharged I was really week but push myself to walk a bit future as there was a sale in a shop. Well I was really exhausted from it had to spend the weekend in bed after it.

Hunnypieprank · 06/02/2023 16:12

How are you doing

VeryLittleOwl · 07/02/2023 21:17

Hunnypieprank · 06/02/2023 16:12

How are you doing

I'm a lot better, thank you :) Still have to be a bit careful about how much I physically do in a day, but today I've walked the dogs, done a load of laundry, done an hour of maths for my OU course, cooked lunch, hoovered upstairs, driven myself 26 miles into town, had my hair cut and coloured, nipped into the supermarket, drove home, opened up the village hall for someone who'd left their coat and boots in there after an event last week, filled up the horses' water, and then tidied up in the kitchen after DH cooked supper. Which is a million miles from where I was two weeks ago!

I had my first blood test check-up last Thursday and got a call from the surgery this afternoon to make a phone appointment with the doctor, so I assume I'll find out which tablets I have to keep taking and which I can stop, as I've only got 8 days left of the ones the hospital gave me. Crossing my fingers very hard that I can stop the nightly injections because they're not fun.

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