Ehlers Danlos diagnosis

[WitheringTights000]

Hi all,

Does anyone know where I can get a private Ehlers Danlos syndrome diagnosis/ or have it ruled out!

There was one specialist (whose name escapes me) who I had contacted but was told by their PA that they were going on a sabbatical ( this was one year ago) ...they asked me for referral letters which I sent in, then I never heard a thing again despite contacting her again!

Help! I don't have a clue who to go to!

Anywhere In UK is fine

The top specialists congregate at the London Hypermobility network based at the Wellington Hospital in London although there are some great people trained by them dotted around the place.
I was diagnosed by Prof Grahame however I don’t see him open to new patients right now. Prof Roger Wolman will give you an equally thorough, professional, compassionate experience and diagnosis. Highly recommend. Xx