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Absence seizures - worried about dropping baby

4 replies

Papergirl1968 · 15/01/2023 11:44

I have a benign brain tumour which means I have occasional seizures, mainly absence seizures where I stop talking and stare blankly for a couple of minutes, before saying something which makes no sense at all, e.g. "I'd better go and start dinner," when we'd already had it. I have absolutely no warning that I'm going to have one, and little or no memory of it afterwards, other than a vague feeling that something happened.
My 18-year-old daughter is pregnant, and will be a single mum, so will need lots of support. She has her own flat but I think she will probably spend a couple of nights a week at mine.
Does anyone know what would happen if I had a seizure while holding the baby? I hope instinct would make me hold on to it but I'm worried about dropping it.
I will try to only hold the baby when I'm sitting down, when daughter is in the room etc, and I've thought about other precautions I could take like placing cushions on the floor around where I'm sitting - we have mainly wooden floors unfortunately.
I wondered if anyone has any experience or thoughts?

OP posts:
Poppins2016 · 15/01/2023 11:52

When I was reading your post I wondered how often you have absence seizures during activities where you need to be careful such as chopping food with sharp knives or holding a hot drink (and what happens - e.g. would you hold onto the hot drink or drop it)? Are there any activities or circumstances that seem to trigger seizures more/less often?

graphitehit · 15/01/2023 12:08

How often do you have them?
Unless the answer is 'very rarely' I think your concerns are valid and I would be worried about holding the baby should a seizure occur, and about you having the baby unsupervised in general. I'm sorry, this won't be the answer you wanted. You sound very conscientious and like you want to do the right thing.

HeyBearILoveYou · 15/01/2023 12:25

I have epilepsy, and an 9 month old. I hadn't had a seizure for 7 years so was pretty relaxed about holding her etc, but then had two in October, so I get your concern!

There's lots of useful advice on the epilepsy action website (www.epilepsy.org.uk/living/parents-and-children/parents-with-epilepsy)

In my experience of absence seizures I do just carry on with what I'm doing, but there's no guarantee, everyone is different I think. Advice from my neurologist is to hold baby in a safe place (on the sofa, bed etc), not bathing them alone, and not carrying them downstairs unless they're in a baby carrier etc, although clearly this isn't always practical.

How long do your absences last?

Papergirl1968 · 15/01/2023 12:35

Thank you all.
I think all of the absence seizures have actually been while I've been sitting, although I can't swear that I haven't had them at other times and not realised. I don't think I've ever had one while eating or drinking, using sharp knives etc, but I don't have many hot drinks or use sharp knives much - I'm not much of a cook!
They only last a couple of mins. I hadn't had any for three months, and then had two around New Year. They all seen to happen in the evenings, particularly when I'm tired or stressed.
I have also had full seizures where I've keeled over, but not recently. My tablets have been increased so I hope these have stopped.
Thanks for the epilepsy website link, HeyBear. I'll have a look at that.

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