Horrendously loud tinnitus

[Texarkana67]

I developed tinnitus about last June after having microsuction in my left ear which resulted in some hearing loss in that ear. The tinnitus started as hissing and is now hissing, droning like a vehicles engine and warbling, all at once. There has been no let up since then and it is extremely loud and constant 24/7. I lost my appetite when this began and have hardly eaten since, losing two stone in a few months and since July I havent been out as I can't stand the traffic noise and feeling disorientated, as well as feeling queasy a lot of the time.

Is there anyone else here with loud and constant tinnitus who has somehow overcome this? If not for my fiance I probably wouldnt be here now, but he's got heart surgery coming up (found out last June he had a heart problem) and I'm worried I wont cope when he goes into hospital, really worried I'll do something silly :(

Hi there,
I am very sorry you are going through this.
I have developed a very loud tinnitus since I had an accident at the gym, where a really heavy equipment fell on my face from 2 meters.
I have visited all possible ENT's, from NHS to Harley Street, ordered "miraculous" pills from the internet, tried the white noise apps, unfortunately, nothing works. In my case, evenings are the worst when I try to fall and sleep. However silly this may sound, you need to try and live with it and try not to focus on it. There is no cure :-(

I just wanted to provide a tiny bit of hope, even if anecdotally. My mum developed horrendous tinnitus, badly enough that it made her feel suicidal as she already had hearing loss and felt she just couldn’t cope with it. But one day the tinnitus just went. That was 20 years ago and it hasn’t been back since.

My husband also developed tinnitus in the summer and is still suffering with it, but his ENT said that there is an app in development that has had promising results in trials in retraining the brain not to hear the noise.

(And tinnitus must be in vogue just now because I also have it myself at the moment and am waiting to see my GP. You have my sympathy!)

Yep, had it for nearly 10 years now. I had a bad ear infection in both ears that started it for me.

Been for MRIs etc but Dr eventually said they cant see anything so nothing can be done. Trying to sleep at night is the worst, especially in the beginning but again you get used to it being there. Now I have menopausal insomnia it annoys me a bit again, especially now as writing this I am thinking about it so it seems worse.

It takes time, but you do learn to accept it, live with it and sometimes even ignore it.

I understand you. I’m lying here right now with my pricing loud pitched ringing. Mine developed in May after suffering random hearing loss in 1 ear. Hasn’t stopped for a moment since. I’m coming to terms with the realisation that I’ll never hear silence again. I’m afraid no advice, but much sympathy.

I have Benign Paroxysmal Positional Vertigo (BPPV) and tinnitus comes as part of my package of symptoms - I was prescribed Betahistine and it helps a bit.

You have my sympathy OP 💐

got mine following my first covid vaccine. Used to be screeching loud for 1.5yrs and i got used to it eventually but it massively impacted my wellbeing. I also had dizziness and could not tolerate any loud noise, TV or conversation. It s an overlay of "kettle noise" and "fridge noise" at the mo.

it spikes up when i m dehydrated, tired, or unwell (esp with Covid)

the only consolation is that i know it did (eventually) improve a bit and that any spike should resolve over time.

I’ve had it in both ears since 1993. You will get used to it. It will become just another noise and your brain will adjust, eventually.
Mine is also associated with deafness so I wear bilateral hearing aids.

I get very sad about never being aware of true silence ever again but heck, I’m alive and there’s plenty pushing up the daisies who would love to change places with me!

Im sending a big hug and hope, as you come to terms with it, you will not be so troubled by it. Try to relax, read up about it and try to accept it because until the medics find a magic pill for it, the alternative is a lot worse!