"Living With..." tips, please

[QueenSmartypants]

Hello

After a lonnnnggggg time, I've recently been diagnosed with ME/CFS.

Am lying here in bed in dim light and silence, feeling physically and emotionally wretched because I've pushed myself too far this month and the crash came Christmas eve.

Don't want to wallow and was thinking that I could really do with a bedside sink so I could freshen up and brush my teeth because I genuinely don't think I can drag myself to the bathroom tonight!

So I was wondering - anyone living with chronic illness/disabilities, do you have any hacks you can share for getting through the bad days?

💪

Basics
On a really awful day I go back to basics. Sleep as much as I can, eat healthy if I can, have a shower if I can

not fatigue here but chronic pain

be kind to yourself

Know that there will be a better day and the worst will eventually pass.

I've not had post-exertion malaise this badly before. And I refuse to feel this emotionally awful next time it happens.

I think if I had things lost toothpaste and brush by bed that I could use when bedridden it would help. Trying to find ways to keep independent.

*things like

I'm sorry meant to finish post off saying thank you for your replies but having issues with thr post function today.

I'm sorry you suffer so much with pain @GreenLeavesRustling, and sandy - you're right I know. But I just need to find ways of coping with the really bad days

Hi! Also recently diagnosed with ME/CFS. I'm under Sutton Hospital.

I can't say I have that many tips so far, other than try to gain a deep understanding of what makes you feel better or worse. Do less of the stuff that makes you feel worse and more of the stuff that makes you feel better.