She’s 21yo. She does have a few underlying health conditions, EDS, coeliac disease, fibromyalgia, POTS. I genuinely believe she doesn’t have an eating disorder and she is not getting glutened. She has a terrible reaction to getting glutened and it’s very distinctive, projectile vomiting, shaking, slurring her words, collapsing. Only happens like once or twice a year.
she always feels nauseous, if she eats she feels sick, really bad stomach pains. She’s frequently sick. I would say she vomits a few times every week, sometimes for an entire day. So if she eats something for lunch she won’t be able to eat for the rest of the day as she’s in so much pain.
she has been to the gp dozens and dozens of times over the last decade regarding this and they have been useless. She got the coeliac diagnosis 5 years ago which we thought would be the answer and things improved for a bit but then we are back to square one. It doesn’t seem to be a food allergy as it doesn’t matter what she eats. She went dairy free for six months and was no better. She had an an endoscopy 5 years ago which did say she had a hiatus hernia. The GP prescribes omeprazole which seems to make no difference.
she was having a blood test yesterday and they weighed her and she’s dropped from 55kg to 45kg. The nurse to,d her she’s underweight and needs to eat more. Well yes, but how.
she has another gp appointment in a few days and she wants me to go with her which I will. I’m just not sure what to ask for next. Last time I went with her I asked if she might have gastroparesis which people with EDS can get and the GP looked at me like I was insane and said no.
are there any protein shakes, etc which might be worth trying? I actually think she’s incapable of eating now and maybe we need to look at a liquid diet to get calories in?