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Original poster

High iron levels

7 replies

Rnm62 · 20/12/2022 00:11

Hi everyone,

Partner had a blood test. Everything was fine apart from high iron levels (43). I think they said the cut off for normal was 30 or 33, I can’t remember.

So they’ve done repeat blood tests which we get the results of tomorrow or Wednesday.

Anyone any experience on what can cause this?

Thanks.

OP posts:
ScaredSceptic · 20/12/2022 00:14

Am sure there may be various possible causes but the only one I know about is hemachromatosis.

Original poster
Rnm62 · 20/12/2022 00:19

ScaredSceptic · 20/12/2022 00:14

Am sure there may be various possible causes but the only one I know about is hemachromatosis.

Thanks for your reply.

I did read up about that.

OP posts:
donttalkaboutbookclub · 20/12/2022 00:47

It's good that he's having more blood tests. My dh has the same with very high levels which have increased over time, but his GP has had little interest and the only 'therapy' has been to donate blood to keep levels down a little. He's finally having some more tests and might be referred to a haematologist but that's not certain. His symptoms are diverse - tiredness, poor skin, bad sleeping, and joint pain.

Original poster
Rnm62 · 20/12/2022 01:46

donttalkaboutbookclub · 20/12/2022 00:47

It's good that he's having more blood tests. My dh has the same with very high levels which have increased over time, but his GP has had little interest and the only 'therapy' has been to donate blood to keep levels down a little. He's finally having some more tests and might be referred to a haematologist but that's not certain. His symptoms are diverse - tiredness, poor skin, bad sleeping, and joint pain.

Thanks for your reply.

What level was your partners iron?

I think they did mention the repeat blood tests then refer to haematology if needed.

So will have to wait on the blood results this week.

Partner has been feeling really tired. It’s crazy as he has actually had low iron & b12 in the past which I know correlates with tiredness/dizziness etc but we didn’t know if high iron causes that. So it’s crazy we’re experiencing the opposite now.

OP posts:
donttalkaboutbookclub · 20/12/2022 08:02

I'll try and find out his level and let you know. Whatever it was I know it was always below the threshold for NHS label of 'abnormal' though in other countries such as the US it would be. Frustrating - and this has been for about 10 years. People often think high iron must be a good thing, but it can be very damaging to your whole body. I'm no expert, only what I've learned via dh. I hope your partner gets some help.

littlerose12345 · 20/12/2022 08:24

My dad has a condition called Hyperferritinemia where his iron levels are too high. Doesn't make him feel bad but he regularly needs to have blood taken out to bring the level down.

donttalkaboutbookclub · 20/12/2022 10:16

My dh is currently being investigated for coeliac disease and sleep apnoea - GP is looking for the cause of the blood problems.

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