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Enlarged and sore polycystic ovaries without PCOS symptoms

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H1Drink1 · 04/12/2022 00:12

I’m in my early 30s. In the last 18 months or so I’ve developed polycystic ovaries. I already have endometriosis so they were picked up on one of my periodic ultrasounds. It started off quite mild but my last scan showed that my ovaries have become very enlarged, with volumes of 27ml and 23ml respectively. The doctor said they’re at the top end and can’t really get any bigger.

In addition to my typical endometriosis pain, I’ve had a constant throbbing, aching and heaviness on both sides of my pelvis for some time now. The doctor told me this is likely due to the size of my ovaries.

I don’t really have any symptoms of PCOS and the last hormonal blood tests I had showed no elevation in testosterone. I do have high prolactin levels and I think there’s some sort of link, but this hasn’t been investigated. I’ve always had a low BMI, no hirsutism and until I had the coil my periods were regular. I did have severe acne but a round of isotretinoin cured it.

I’ve been told I have to have blood tests to check testosterone again. If it comes back normal I’m at a bit of a loss. I’m reluctant to start any hormonal PCOS treatments like progesterone without knowing whether it’s actually PCOS or something else causing my ovaries to be polycystic. And I’m definitely not taking things like metformin or spiro without an expert’s opinion.

I’m just wondering if anyone else has been in this position, either of having painful enlarged ovaries or of not knowing what’s causing them to be polycystic? I’m despairing because endometriosis already causes so many problems for me, and now I have this to deal with on top. I don’t know if this is going to be something I just have to put up with until menopause. It’s so shit.

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