1.5 years of unexplained tingling on left leg only

[Kittley]

I feel like I'm about to lose my mind with this unexplained tingling / pins and needles in my left leg only for over 1.5 years. I've had numerous calls and face to face appts with different GP's, blood tests, ct scan, I even went to a private Neurologist as advised by my GP and had an MRI of my spine and head and Neurologist ruled out anything related to that field. I've had nerve conduction test studies and that were all fine. I've been to a chiropractor just in case and he couldn't figure out what it is. In the past couple of weeks, apart from the tingling that comes and goes I've started to get a random sharp pain on a very specific spot on yhr inner upper thigh. The pain is shooting and the area is maybe as small as a 50p coin. Has anyone had a by similar? I can go back to my GP again but feel like I'm not getting anywhere.

I had this. Try a sports massage. Could be a tight muscle in your back compressing a nerve.

Sounds like an impinged nerve. Have a proper sports physio massage and lie on a bed of nails (the brand name mat is the best)

I feel for you, I’ve been dealing with similar for about the same amount of time as you, except it’s in both my lower legs and feet. Had every test known to man and still no answers (including umpteen blood tests, some of which I’ve been told are very hard to get on the NHS). Had MRI’s on my lower back, all normal and nerve conduction studies, again all normal. Saw a neurologist who said I don’t have any issues with my nerves! 🥴 I’ve seen chiropractors, osteopaths and they can’t pin point anything either (well the osteo was convinced it was connected to my breathing?!). I also get patches of altered sensations, like goosebumps without the actual bumps, feelings of something crawling on my skin and like I have a loose hair on me, when I don’t! 😕 It’s awful to put up with and it goes through stages where it’s not so noticeable and then it just flares up to where it’s very noticeable (and painful). GP is stumped but referred me to rheumatology to rule out any connective tissue diseases, I have an appointment this coming week. If that finds nothing then I’m at the end of the road as far as I can see… I do suffer with anxiety so the GP said it will probably be put down to that if rheumatology don’t find anything 😭 I hope you can get some answers, I would keep badgering your GP (that’s what I’ve been doing) until all avenues have been explored.

I have got me/CFS and get pins and needles from that. It's post viral but with other symptoms too. Have you had a virus that could have caused the onset of this?

I have found that acupuncture and massage with a physiotherapist helps although haven't been back since covid. Also yoga/gentle stretches help a little.

I have had an MRI, nerve tests and neck x-ray, also some strange visual perception test..I think they were trying to rule out MS. So it's good news if your tests haven't shown anything of concern on them.

Good luck I hope you find something that helps.

I had this about 15 years ago, tests, MRI , it was weird! I had a few blackouts too and really thought it was MS.

Then if went as inexplicably as it arrived.

Thank you all for everyone's responses, I appreciate it. I will definitely consider seeing a physio.

@Sickandtiredofbeingsick so sorry you've been going through this. I really understand how you feel, it's exhausting and frustrating. Would be really interested to know how you get on once you see the Rheumatologist. Take care

ahh yes, very similar story too, apart from I also had/have dead arms at night, carpal tunnel symptoms during the day, twitchy muscles and weird pixilated vision. weight loss and struggle to maintain weight. all of this is on off over the last 4 years.

Had all the tests all through lock down, MRI, nerve tests, ultra sounds, x-rays, blood tests more blood tests and some more. Nothing. I've been discharged from neurology as they have covered everything.

Also had blood tests for some autoimmune diseases.

What i find is, my symptoms arise when I physically push myself.

A new friend has pointed me in the direction of something to do with heart valves, and blood pressure being different on either side of the body. (which is rarely pick up on, because they only normally check blood pressure on one arm at a time)

I've yet to ask the Dr about it though.

I've had this and all the tests and was diagnosed with functional neurological syndrome. Basically something in the "software" of your neurology is malfunctioning but it isn't anything serious or degenerative. Mine is definitely worse with stress and anxiety. Look it up and see if the symptoms fit?

@Kittley I saw the rheumatologist and he ruled out any connective tissue disorders so it’s being put down to anxiety/stress 😕