Possible Parkinson's Disease and waiting times for neurology appointment.

[EducatingArti]

My GP has just referred me to Neurology to look at some symptoms which may ( or may not ) be indicative of PD.
Does anyone have any ideas as to how long I am likely to wait for an appointment. I know this will very around the country but I'm interested in others' experiences to get an idea of the range of times I might expect.
I did ask the GP. She said she didn't know!

If you know where you’ve been referred to, OP, it’s quite reasonable to politely phone and enquire.

Good luck.

It’s around 8 months here. I’d pay for a private appointment if you can. You’ll hopefully get a private appointment in the next couple of weeks.

The problem is, that it wouldn't just be a consultation. I will need at least an MRI scan plus blood tests and maybe a different type of scan also and I can't afford that.

@EducatingArti how old are you if you don't mind us asking?

I'm so sorry I don't know anything about waiting times but I can only say, my best friend has early onset Parkinsons and while it makes life very difficult, there is so much support around. Hand holding and sending lots of love. X

It takes a few weeks to a month then they refer for scans but if the radiology people think you need different scans (cheaper ) you have to have them first, then wait again I'm waiting on the next round of tests for different suspicions but it's excruciating and all I can say is distract yourself and call the neuro secretary (if you can find out who you're under ) every 2 weeks with any changes to your condition as that helps keep things moving. I think it may be Jan before I get answers. Good luck

Agree to call the neuro secretary & be assertive in that day you are happy to attend last min cancellations. Stress that you can be there in xx mins if need be.

I am 58. Thank you all for your helpful advice.

Good luck OP xxx

I was referred to neurology in May as GP suspected a brain tumour, MND or MS. I was also referred for an urgent brain scan which I had within a week (and was thankfully normal), blood tests and nerve conduction tests (also normal), but this week finally received an appointment with an NHS neurologist for mid January.
I did end up paying private in July as my anxiety levels were through the roof (I am 39 with a young family). My GP did a referral letter and sent my results to the private neurologist so I only had to pay the consultation fee and got a diagnosis then, but as the appointment was 20 mins and the condition is one I'd never heard of, I have lots of questions to ask at my NHS appointment. Good luck

What condition were you finally diagnosed with, do you mind me asking?

Dystonia but when we came home and googled it, there are several types and I am not sure which mine is classed - a question for the NHS neurologist. I have a tremor in my right hand, foot drop in my right foot and when I am (trying to) stand still, there is a little movement and my top half wants to lean to the left.

That's interesting my refer is for wrist drop and vision issues, suspected ms or mnd now tumours are out. Though they found 1 leison on my frontal lobe but it's very frustrating with all the waiting and my wrist improves then goes again. Sending you both a hand hold

Thank you, you too

I was diagnosed with Parkinson’s in 2017 things have obviously changed as I saw my GP on Tuesday, phone call from neurology Wednesday, appointment and diagnosis Thursday.
Sending you good wishes, and if you want to dm me, you’re more than welcome to

Thank you for the hand hold. Suffering from a bit of free floating anxiety right now.
Mainly I am ok with the ",I don't know, it could be something serious but it could also be fine" situation but just tonight a free floating anxiety not really attached to specific thoughts has started.

I get it, I think I'm OK as no news is good news, don't worry until there's something to worry about and then every now and again it all gets too much and i breakdown and then start again.

I had no clue, PD wasn’t mentioned until the neurologist told me ‘you have Parkinson’s disease’ I was diagnosed at 45.

DH diagnosed with early onset PD.
He waited months for scans & then months again for result which was given over phone.
It wasn't great.

Did anyone get any answers I'm a year in and neuro is bored of me now, I'm bored of him aswell fed up of bloods and tests yes I know they are necessary but it is never ending and still all he keeps saying is well it could be a migraine thing ? He's referring me to rheumatology now so more tests with now answers and the tiredness is worse not better

I am waiting for a neurology appointment. It’s 58 weeks her or 26 for an urgent referral. My doctor put in a referral then a few months later for an urgent referral. I am still waiting to hear. Like you I can’t afford to go private.

Mine was meant to be 7 months got it down to 7 weeks year to see consultant