Right Bundle Branch Block in DS 17

[Verbena17]

Posted here and children’s health
Hi,
Almost not paediatric anymore but not yet 18 so posting here.

Found today that DS 17 has (partial) right bundle branch block (RBBB). He had a first ECG in October and the advice had been sent back to the GP & eating disorder clinic without telling me. I had asked the nurse what the feedback was and she said just sinus tachycardia. But it wasn’t just that at all.

I understand RBBB is often fine left as it is and has no consequences. However, my DS is having symptoms (we assumed they’re anxiety based as he has 24/7 high anxiety ) of heart pain and chest pain, breathlessness on doing anything - going upstairs, walking more than a few hundred metres, bending down etc.
He also feels faint now and again, his feet are pretty much always purple and we just assumed it was due to him not eating and drinking enough because of his eating disorder.

With electrical signals being not being continuous though in RBBB, I’m thinking all of these symptoms are down to this. Cardio team wrote back to GP & eating disorder clinic advising it’s probably fine.
We are seeing the GP next week to get a referral to cardiology but just wondered if anyone else had this issue with a teen and if yes, did the cardio team also seem a bit blasé?

We have similar with dd(19) but no eating disorder. They suspect she has POTS and she's been referred to the autonomic team for tilt test etc. All the same symptoms as your son, the purple extremities are fascinating and she used to be told to wear gloves in PE because of the colour of her hands!
Our gp got her to do an 'active stand test' at home and let him know the results. You could try that and see if there's a difference in his standing/lying results.

No-one seems interested in the RBBB🤔

Thank you for your reply gleegeek. That was very helpful.

He nearly always has a big BP ch age from sitting to standing - we (including Ed team) all assumed it was because of his very low fluid intake - when at school, he isn’t drinking a single drop of anything from waking up to until 3:30pm.

But annoyingly, the same symptoms for lack of fluids and low calorie intake cover his ED and RBBB.

Think the issue getting someone to take it seriously is the fact the ED clinic is stand alone, our GP is in the same county but the hospital GP sent ECG results to to double check is another county. They all share System one but failed to tell me any of it! They’re all doing little parts of a bigger thing so he definitely needs a referral and for someone to look at him holistically.

I hope your DD manages to get some support. Our DD’s friend has been diagnosed with POTS - so difficult.