My dh eventually took her to A£E as GP was fobbing off. Dh is a GP so he pulled the concerned parent card and they were a bit huffy with him and the did the x-ray, it was clear straight away what was happening.
She was referred to the Perthes clinic in Glasgow (the West of Scotland has one of the highest rates of Perthes in the world so the clinic was really good). They basically took her off her feet, no running, jumping, limited walking and standing, and we were given a Major buggy that day that she used until she was 7. As her hip crumbled she had very little pain, but it was weird to watch on X-ray. Once it started to regrow they were really pleased with it, and she was discharged at age 14.
Unfortunately she started to get pain at age 16 and she was referred to the Young Adult hip clinic, where they discovered it had overgrown and the ball had become misshapen. The only treatment now available is total hip replacement. She's 18 and on the waiting list, but it could be another 2 years due to covid backlog. She takes tramadol, has painkilling lidocaine patches and is just getting fitted with an orthotic insole as her right leg is shorter.
She's so brave, she's a full time beauty therapy student and also has a job in a spa 2 days a week. The main concession to her illness is she uses taxis for some journeys, though she is learning to drive. We're lucky we can afford this.
If there's anything else you might need to know, please don't hesitate to ask!