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Migraine help-feeling like giving up

32 replies

Migraineh3l · 25/10/2022 00:33

I've suffered migraines and headaches all my life from a teen on and off. I've had scans done when I was a teen as I missed a lot of school. They said I'd grow out of them. I got acupunture on the nhs which helped me when I was younger to relax as I had a lot of tension headaches as well as migraines. In the past 3 years I've had around 8 migraines a month, some lasting 1 day up to 5/6 days. This time I've had it on and off since last Thursday. Seems to be in the morning leading to afternoon but tonight it is back. I'm on Rizatriptan and Propanolol. Also have cocodamol for back problems/ endemetriosis pains which I take 8 of a day. I also have naproxen for a shoulder injury but it ruins my guts so don't take that unless in agony. I've asked my gp for a referral to neurology and she said wait and see what the propranolol does. Its turning me in to an insomniac which is one of the propranolol side effects. I can't say it's reduced migraines. I've tried white tiger balm, massages from professionals, acupunture and an acupressure mat. Nothing works. I'm at my wits end. I'm going to ask again for neurology tomorrow. Thursday night I had sharp pains which felt like deep in my brain which turned in to migraine. I've felt nauseous since then, only able to eat now and again when the nausea goes away temporarily but comes back. Right now I have a headache as with migraine I can't tolerate phone screen or any lights I have to lie in the dark. It's ruining my life. I have a full time successful career which I've had so much time off from im now worried about being put on formal absence procedures. I also have a Daughter, who when I'm like this I can minimally parent. She's very good and will go on her laptop and watch TV but it's not fair on her and adds to my guilt. She just came back after school today after being at her Dad's so luckily I haven't been neglecting her since Thursday. Sorry this is so long I just don't know what else I can do. Oh I also take Aspirin if the Rizatriptan doesn't work. Problem is the Rizatriptan only comes in packs of 6 so when I get a marathon migraine like this one it only lasts a couple days. My partner went to get sumitriptan today for me over the counter but again only 2 tabs in a box so now gone. G.p had done my prescription today for riza but pharmacy weren't able to do it today.
I'm now thinking I have a brain tumour as surely its not normal to suffer this much this often with migraine. Acupuncture helps at the time but doesn't stop the amount of migraines. The white tiger balm numbs my forehead but doesn't help the pain in my brain/skull. I've tried mindfulness meditation too to relax but doesn't work. I'm going to be up all night now as I slept on and off today trying to get rid of the pain.
Am I missing anything? Anyone tried anything else? I've thought about botox for migraine it's expensive but if it took then away it'd be worth it. The dentist said I grind my teeth as well which can cause headache and migraine, I have a mouth guard now but doesn't seem to stop these.
Please help I'm so fed up and thinking I am dying. I just want to feel well and live a normal life. Sorry for the self pity.

OP posts:
Migraineh3l · 31/10/2022 01:25

Thanks all for your helpful suggestions. I took a break from my phone for a bit so not been online. I spoke to gp and awaiting neurology apt. I have started taking magnesium and b12 supplements. Fingers crossed for a migraine free week!

OP posts:
SquirrelSoShiny · 31/10/2022 01:28

My friend went vegan. It pretty much cured them especially cutting out dairy.

Migraineh3l · 31/10/2022 01:35

Thanks so much to the person who posted the link to buy more triptans. Ordering some now. I'm feeling overwhelmed by the kindness of you all posting your tips and advice. This will all really help. Thank you all again.

OP posts:
BlackSwan · 31/10/2022 07:33

This is left field but... I had migraines for decades & found out in my 40's I had a hole in my heart (atrial septal defect). Turns out around 30% of people with ASDs get migraines. I have had the ASD fixed... and so far, no more migraines.

tootra · 16/01/2025 00:29

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onlytherain · 17/01/2025 00:10

Sounds like you have chronic migraine. "Chronic migraine is defined as having headache on at least 15 days per month, with eight of these having migraine symptoms, for at least three months." (The Migraine Trust)

If you have tried three different types of treatment (anti-depressants, anti-seizure meds, beta-blockers, botox, nerve blocks), you can ask for CGRP injections (eg. Aimovig, Ajovy). They have helped several people I know.

Have you tried a Cefaly device? You can often get them second hand on ebay and they can help reduce the length of migraines or reduce migraine frequency.

Some people find supplements helpful. Dolovent / Migravent has been developed for people with migraine.

Lots of helpful information, in case you have not come across these:
https://migrainetrust.org/
https://migraineworldsummit.com/
https://www.instagram.com/the_migraine_life/ /--/ https://www.themigrainelife.com/

The Migraine Life offers a course that is helpful.

Manage my Pain is a good migraine diary app. A neurologist will ask you to keep one. I would start now, in case you aren't keeping one.

coxesorangepippin · 17/01/2025 03:33

Cold and flu pills

Ice cold coke

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