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Dd with Crohn's

4 replies

Isabelle70 · 15/09/2022 17:55

My adult Dd was diagnosed with Crohn's 8 years ago and has been in remission from time to time has been on steroids and for the last 10 months on Humira.
She has a new specialist and he requested a MRI and she had it 2 weeks ago.
The specialist secretary has been in contact and Dd is going to be reviewed at a MDT Meeting and she will be told the outcome by phone or letter.
I have googled and of course I am now worried sick. Doesn't help that I am away on holiday and just feel a bit helpless.
Has anyone been a patient for a MDT?
I just hope and pray it's no bad news as we lost my Dm to cancer within 3 weeks 4years ago so still fresh in our minds.

OP posts:
nocoolnamesleft · 15/09/2022 18:00

A multi disciplinary team meeting just means clinicians from more than one speciality. The vast, vast majority of MDT meetings have absolutely nothing to do with cancer. So an IBD MDT might have a gastroenterologist, and a specialist radiologist, and maybe a colorectal surgeon. Saying MDT does not mean this has anything to do with cancer.

Isabelle70 · 15/09/2022 18:06

@nocoolnamesleft ah thank you. The first google hit for that type of meeting mentions cancer so felt absolutely awful.

OP posts:
bookworm14 · 15/09/2022 18:19

Please try not to worry. I’ve had Crohn’s for 25 years and my case is regularly discussed by the MDT. Her consultant probably just wants to get a few second opinions on what treatment would be best for your DD.

MunsteadWood · 15/09/2022 18:23

Agreed with PPs. I've had Crohn's for about 10 years and have also been discussed several times at MDT. As others have said it normally just means several different types of healthcare professional together - gastroenterologists, surgeons, specialist nurses etc. It's a good thing - means they'll think about all possible avenues of care and hopefully make better decisions/recommendations as a result.

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