These headaches are starting to worry me.

[saltire]

For a while now, and in particular every night since Sunday i ahve been getting headaches. They are like a migraine, but not, IYSWIM. I ahve laways previously assumed that they are part of the Fibromyalgia and just put up with them. However, they have got more frequent, adn the GP says "oh,it's tension". They are behind my eye - I actually felt last night as though my eyeball was going to burst and the most horrendous pain all over my head.
I have suffered with migraine in the past and always get a warning - blurred vison, flashing lights etc, but not with these.

fibromyalgia does exist alongside these heni plegic headaches adn often the eye is involved.Does your head feel sore to touch?

Yes it does, and I have started to get a pain occasionally down the side of my face and jaw, and it's sore to the touch

I have just been diagnosed with one sided hemiplegic headache after thinking I had been on course for a stroke.I had sore face and jaw too and then I started getting sone shoulder symptoms.Is it always on the same side?

I get horrendous eye pain when my sinuses are inflammed. Any chance it's that?

I had something similar recently and it turned out to be viral meningitis. I felt like my head was inflating and my eyes were bursting out of my head. I couldn't touch my eyelids. But I also couldnt bear any light at all and could only lie flat in bed. If I moved at all the pain in my head was crippling. But this was constant, not just at night.

I read that facial pain was a symptom of Fibromyalgia. However my GP down here and the doctor at the pain clinic won't accept that. i was finally diagnosed with the FMS last year by a Rheumatologist from Forth park Hospital in kirkcaldy. I got to see the pain doctor here and he decided that all my pain was coming from migraines and because my body was tense due to a migraine, then it was causing the other muscles to contract and make them sore.
This theory would be ok, but since I am in pain every day, yet don't have migraines every day, then it doesn't. The pain is usually down the same side and the same eye, usually the left. I have it agian this morning, same side as always and the same eye. i feel like my head is going to burst

I was exactly the same and the left side too.My doctor sent me to a neuro and he diagnosed me in minutes!It is a rare form of inflammatory headache and is associated with FMS.I am on steroids for another condition and I found increasing the dose got rid of the headache and it came back if I lowered them.Have you tried soluble aspirin?It works for me but I can't take it too often but the neuro said the fact that aspirin helps also indicates it is inflammatory.

Mine is called CHRONIC PAROXYSMAL HEMICRANIA if you look this up and see the symptoms and ask for a referral.Apparently there are some excellent medications for this but none were suitable for me because of my other health issues.So I am continuing with teh steroids and will try reducing later this year and try to manage with aspirin aswell.I know how awful it is It took 5 yrs for someone to take me seriously!I felt ill and groggy with it too and so down because I thought it would never go

I have never tried aspirin,I ahve always been advised not to take it because I have asthma (which is very much under control), although take Ibuprofenw ith no effects. I'm goping to bed for a lie down as it is getting worse and the side of my head and eye feel like they are going to burst

If I could get my GP and the pain clinic to accept that I have FMS in the first place then i could ask for a referral to a neourologist. Do you have FMS as well?

My doctors say I have a non specific auto immune condition so god knows.I am not supposed to take aspirin but took it once as an experiment and it does work.In fact when the neurologist heard that aspiring worked he said that was practically a diagnosis as it often works in these situations Could you try it once or is it too risky?what other symptoms do you have?

You mean apart from the headache(I am off to bed soon, promise). I have pain all the time, sometimes it is what I call background pain, which is there all the time, sometimes I get a flare up - which I have now, and the pain is really bad and cause me to be unable to walk properly, sometimes i drag my feet when I walk, I can't help it, it's the way I get with the pain. I actually feel sick with it sometimes. I also have a pain across my shoulders, and chronic tiredness. other symptoms I get (but don't have jsut now) include IBS, heartburn, concentration problems which sometimes makes me say words the wrong round, type them wrongly or have blank moments in the middle of conversations, feeling very cold or very hot, numbness and tingling in the hands and feet, and sometimes I seem to get a weakness in my hands which causes me to drop things. All this while trying to work!

That sounds like me when they reduce my steroids too low!I usually feel sick adn fluey when I have the head pain and I had background episodes and acute flares too.Has anyone seen you in a full flare up?I went to my doctor one day in tears I just couldn't stand another day i was exhausted and he decided to leave me on higher dose steroids and send me to a neurologist.I tried to reduce the steroids again before xmas but fell ill again and have been advised that the longer I take them at the higher dose the more likely the remission will be longer when I reduce.I reaqlly know how you feel you need blood tests when having a flare to check for markers for inflammation in teh body Good luck

I saw my GP in ocotber during a flare up. I have only been here since June, so was quite new to her. Was in tears, could hardly walk, and needed some painkillers. the pain clinic doctor had told my GP i needed to come off the Co-codamol, so she wouldn't give me painkillers, told me to take paracetamol> I asked for referral to physio so i could get a walking stick for getting about during a flare up, she said no, to wait until i had been to "pain managmeent classes" which would become availiable to me after an 8month waiting list and then told me to get my mother to move from Scotland down here to live with me if I was that bad

omg!that is terrible Unfortunately these sort of conditions are related to women a lot of the time and the attitude to treating and diagnosing them is negative.You need a second opinion with an immunology clinic.Next time you have a flare could you go to a&e with the tingling and head pain and really lay it on thick and this will get you blood tests and a referral Sneaky but necesary in your case There are supplement called bromelain which are good for these symptoms and tehy do work It is pineapple extract and you can get it in health shops Maybe try it

saltire, have you checked to see if your pupils are the same size when you have the headaches?

chipmonkey - i have never noticed if they are the same size or not.
have been lying down for a couple of hours, not feeling that much better

If they are different sizes it could be cluster headaches. Are you feeling any better now?

saltire, how are you?