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How does funding work if treatment is given in a completely different trust?

7 replies

Namechangefail123 · 24/08/2022 09:14

My local hospital rejected my referral, so I messaged a specialist in London who is happy to take me under his care. I live 6+hrs from London, so I'm not sure how funding would work?

OP posts:
Cheeriyo · 24/08/2022 09:16

What do you mean, funding as in travel?

Namechangefail123 · 24/08/2022 09:29

No, the funding for my treatment. Or is it covered just because this doctor decided he'd take my case?

OP posts:
TheRookie · 24/08/2022 09:30

What kind of funding do you mean? Is it NHS? If NHS, you're eligible as a UK citizen wherever you get treated.

Namechangefail123 · 24/08/2022 09:35

I just find it bizarre that my local trust decided not to fund my treatment, but knocking on the right door, will give me access to treatment.

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MichelleScarn · 24/08/2022 09:36

Did they say why you don't meet the criteria?

Musicaltheatremum · 24/08/2022 09:39

I'm not sure how it will work. In Scotland if someone wants to go out of area then the home health board have to agree to pay the other area for the procedure.

Namechangefail123 · 24/08/2022 09:41

They just didn't have any knowledge of my condition/syndrome. Thanks to the PP who mentioned Scotland, I would think something like that would need to happen? No idea. There's only 200 diagnosed cases worldwide, so maybe they'll take me as a research subject and that's how it's getting funded (via UCL).

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