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Original poster

Worried it could be MS?

16 replies

Wab · 14/08/2022 22:10

I'm having strange symptoms and worried it could be MS. I keep getting weird tingling in my legs, sometimes both at the same time other times it's just one leg. It can be tingling in one area or a sort of weird "rolling" tingle where it comes in a sort of wave it's a strange sensation. Muscle twitches all over, not so long ago it was my lower eye lid that lasted for weeks but has gone now. Itching feet and hands that is so painful but gone as quick as it comes but several times a day. Sex drive is nil and has been for 3+ years.

I don't know where to start I'm freaking out that it could be MS and I'm utterly terrified to go to the doctor. Has anyone had similar symptoms and it's been something completely different?

OP posts:

vodkaredbullgirl · 14/08/2022 22:14

Just make an appointment with your GP, it's the only way to find out.

Bindayagain · 14/08/2022 22:17

I only know 2 people with MS (including a family member) neither of them had the set of symptoms you describe, if that's any consolation.
What if you have something that could be fixed outright with early treatment, and you just don't go for it because of your fears?

LucyD30 · 14/08/2022 22:19

I had those sorts of symptoms. Dr did all sorts of tests on me and everything came back normal so they did MRI. I was a mess. Weird muscle twitching, tingling, numbness. All sorts of things. MRI came back normal. It was down to severe stress and anxiety. I was moving to the other side of the world and selling by my business and had two very young children. All got too much but I never knew stress could have such a physical impact. I hope you get sorted. Could be a lot of things that aren’t MS causing this. Good luck!

TeeBee · 14/08/2022 22:21

There could be dozens of reasons for these symptoms. But one thing is certain, whatever it is, the sooner you get treatment, the better outcome you will have. So go and make yourself an appointment tomorrow and get yourself sorted. You pay for this medical care through your taxes, now go and use it.

Pom87 · 14/08/2022 22:24

I had these symptoms. Had all tests and an MRI and all normal. Was stress too like PP. I get it with a lower severity whenever i go through stress.

Janedoe82 · 14/08/2022 22:25

I had these- Pernicious Anemia. Also known as B12 deficiency

LaSavoie · 14/08/2022 22:27

Mega Benfotiamine. I had similar tingling then took these and it went in about 5 days.

Mano2020 · 14/08/2022 22:27

I had the exact same symptoms had A MRI which came back clear but bloods showed vitamin d, b12 and iron deficiency. Once I got the right vitamins all my symptoms disappeared. Best of luck!

OldWivesTale · 14/08/2022 22:30

I had the same symptoms years ago and thought it was MS. I saw a neurologist and had an MRI scan ( in France) and everything was normal. I was told that my symptoms were too generalised for MS - and yours sound too generalised. Also, your anxiety is making everything worse.

Janesmom · 14/08/2022 22:31

Same as others above. Exactly those symptoms about 6 years ago. Tests didn’t find anything and they mostly resolved over time. Good luck OP!

FavouriteMug · 14/08/2022 22:39

Definitely speak to your GP but please also get your B12 levels checked and share the results (regardless of whether your GP deems them to be normal or not), on either the Health Unlocked forum for Pernicious Anaemia or the B12/Pernicious Anaemia Facebook page.

tiredandstripey · 14/08/2022 22:41

I had the same symptoms including twitching and pins and needles etc. Was due to a combination of low B12, low iron and stress. My brother has MS so I was petrified but all was fine.

SB1990 · 02/01/2023 17:33

Hey, I hope you’re better now. How long did this last for you?

User3456 · 02/01/2023 17:43

I get pins and needles and twitches among other things, my diagnosis is ME/CFS. I am under a neurologist and had two MRIs plus nerve and vision tests, and an x-ray of my neck. The MRI did show demyelination which also happens in MS but mine hasn't deteriorated between the two MRIs - they said it's 'radiologically isolated syndrome' not MS which was a relief. No particular treatment. I was offered gabapentin for the pins and needles but I don't like the sound of the side effects from that so just plodding on really.
Definitely worth speaking to the GP, OP. I hope it turns out to be nothing serious. Good luck.

Original poster

Wab · 02/01/2023 22:33

Thank you all, turned out to be a severe b12 and iron deficiency. Treatment has thankfully stopped the symptoms and my life has slowly started to return to normal.

OP posts:

SB1990 · 03/01/2023 05:27

So happy you’re better and thanks for replying. Hope mines nothing serious x

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