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Iron infusion - really worried

15 replies

1sttimemama123 · 03/08/2022 13:02

Hey,
My haemoglobin has dropped from 112 to 94 and my ferritin from 33 to 19, despite taking ferrous fumarate with Vitamin C. I am pregnant with my second child and my midwife has booked me in for an iron infusion (they were talking about a blood transfusion, but this seems like the middle step!).
I'm really scared though - I have a terrible phobia of drugs and anaphylaxis / getting chest pain / shortness of breath etc. And because I've not felt great in a while my health anxiety is definitely quite bad at the moment.
The problem is, the first thing my midwife mentioned was the side effects (same with anything you read online) and I know they start by administering it slowly to watch for reactions. my worst nightmare!! I just wondered if anyone has had one, had similar worries, or could reassure me that it's unlikely I'd have a reaction. At the moment, it feels like it's a given that I will!
Thanks so much

OP posts:
ODFOx · 03/08/2022 13:18

I have them regularly, at least every 4-6 weeks or so.

I have had one negative reaction when they gave me ferritin by a long bonus instead of infusion (and it wasn't that serious). Otherwise I have iron infusions and no side effects except feeling much much better than before I went in within an hour. It's a mini miracle treatment for me.

midairchallenger · 03/08/2022 13:26

I've had several. Like anything medical they have to share benefits and risks with you to obtain your consent. Don't forget even paracetamol has a list of scary stuff in the leaflets, but it doesn't affect most people.

Every time it was very calm and relaxed. A bunch of paperwork to go through when you arrive which gives you a chance to settle down and get used to the environment. They take observations (temperature etc) before they start it as a baseline.

When you and they are ready they cannulate you and start the infusion. It's at a steady rate throughout but they check on you more often at the start - it doesn't start slow and then get sped up or anything, it's just that they monitor you more closely at the beginning.

The actual infusion is the quickest part of being there, the paperwork and monitoring before and after take the most time - it's very safe and you will be very well looked after. Having an iron taste in your mouth is the most likely side effect. Every time they check on you they will ask how you feel so you can share any worries and they can reassure.

On one of mine I started to get itchy skin - very very gradually. So they kept a close eye on me and then gave me hydrocortisone and an antihistamine (I forget which one) through the cannula. That took a few seconds to administer and not many minutes later the itching stopped.

Itchiness was the most exciting thing that happened! Now they know my body does that they always give me the extra drugs at the start so we can skip the itchiness. But I didn't have any reaction the first few times and you probably won't either.

Then after the infusion finishes you stay there for a little while so you and they are happy, then they remove the cannula and you can go home.

It might give you a mild tummy ache for a day or so (because it's iron) but then within 3 weeks you should notice you are feeling much more like yourself and you will be glad you did it. It's so much more effective and quicker to benefit you than tablets.

I've also had blood transfusions. I will mention this as you said it had been discussed as a possibility, so you have the info.

If you end up with that later on, it's not as scary as it sounds - they have really careful protocols to keep you safe and ensure the right blood goes to the right person. With a blood transfusion you feel better by the time you go home! But it takes hours per unit of blood so you will be there a long time. Worst bit is getting bored! Iron infusions are super fast by comparison, they just take a few weeks longer for you to feel the benefit.

Do you have any strategies to help with your anxiety? I find focusing on my breathing and talking to myself reassuringly are very helpful in situations like this. Also bringing headphones to listen to favourite music or similar can help as a distraction. If you tell the staff you're anxious they can support you too.

Infusions and transfusions are usually (at least here) handled by a team who do them all day every day - they have it down to an art and they know how to reassure patients because lots of people find it stressful or worrying.

You will be ok and if you need another one in future the second time will be easier because you'll know what to expect and that you can handle it.

AlansFungalFootPowder · 03/08/2022 13:34

I had an allergic reaction but it was handled with antihistamines and I felt like I’d been given the kiss of life when the anaemia was sorted.

1sttimemama123 · 03/08/2022 13:40

Wow, thank you @ODFOx and @midairchallenger for you kind and reassuring replies. @midairchallenger - it's so lovely that you've taken the time to explain the full process to me so that I really know what to expect.

It's funny, I managed to get through childbirth without any medications (not even paracetamol or gas and air) because experiencing that was my preference over worrying about side effects of any drugs! So I suppose what I need to do now is trust my inner strength, breath work and body to work through any anxieties - and know I have useful tools to tap into on the day.

Thank you again, I couldn't be more grateful to hear from you both.

OP posts:
AlansFungalFootPowder · 03/08/2022 15:59

Sorry if you thought my reply was unkind/worrying, I meant to reassure that while there are no guarantees, even if something happens you will be well looked after and it’s unlikely to be anything extreme. All the best.

fizzywat · 03/08/2022 19:54

Another iron infusion veteran here. No problems whatsoever, was monitored constantly for reaction which was reassuring. I felt like a flower opening up on a Summer morning afterwards. Such a great treatment for people like us.

You will be fine, and good luck with the baby.

NeverDropYourMooncup · 03/08/2022 19:58

Hold onto the thought that'll make you less likely to feel breathless.

Brunonononooo · 03/08/2022 20:02

I have had a lot of these including whilst pregnant. They have always been fine - no adverse reaction at all, just a boring wait as they are non-urgent! I can’t promise you won’t feel stressed when you’re having it don’t if you don’t like having medical interventions as it’s a drip which beeps etc (doesn’t bother me but I can appreciate it might bother someone who isn’t keen/used to hospital). However I can pretty much promise you will be feeling so much better afterwards it will be worth it! They started mine off slowly but were able to do it in half an hour in the end because I had no problems - hopefully you will have the same and just be in and out. Good luck.

BlackSwan · 03/08/2022 20:10

I had one and no reactions at all - very quick - only took a half hour max. Only positive outcomes I'm happy to say.

Try not to overthink it.

Afterfire · 03/08/2022 20:14

I don’t know if this will help but I’ve got long term anaemia and when I was pregnant with my dc I’ve had all sorts of infusions and iron injections (!) daily in my bum etc. Not very pleasant BUT nothing particularly awful and it’s best to think along the lines that actually if you don’t have it done anaemia itself can cause you all sorts of issues from chest pains, to palpitations to death itself in very serious cases (I know that sounds dramatic!) but what I’m trying to say is the benefits really outweigh the risks so focus on those.

1sttimemama123 · 03/08/2022 22:51

@AlansFungalFootPowder That’s kind of you to message again - I totally see what you’re saying / meant. Definitely in the right place if anything were to happen. But feeling so much better since receiving all your replies, thank you so much. My husband is coming with me so can hold my hand through it if needed - I bet it’s one of those things that I worry about loads in the advance and then realise it’s totally fine in the moment!

OP posts:
1sttimemama123 · 03/08/2022 22:53

Thank you @fizzywat and I love your analogy! Hope I feel that way too!

OP posts:
Iheartmysmart · 03/08/2022 23:00

Mine was absolutely fine and I’m allergic to loads of things. Had a slightly swollen and bruised hand the next day from the cannula but that was it. Take something to do though as it’s a bit boring!

BeaLola · 04/08/2022 01:36

I had 2 iron infusions earlier this year. I had no side effects at all - it was very straightforward- I took my kindle and read both times - first time took about 1.5hrs inc Paperwork and 2nd tine about 1hr.

I had a blood transfusion a couple of years ago - that took longer - lots of sitting around whilst they chased up for my blood -ended up being in the unit for nearly 12 hours.

Hope yours goes smoothly and good luck with your baby

Lula74 · 10/08/2022 08:10

@1sttimemama123 just popping on to agree with other folk on here. I've had three iron infusions and two units of blood in recent months. I was told they don't tend to give you blood unless you drop your haemoglobin below 70, so hopefully iron will do you just fine. It's quick and easy, and you start to feel better after a week. Just to say also it's a weird colour - I was kind of expecting it to be clear, because most drips are??? Dunno why. But it's browny-reddish, not bright red like blood but kind of rust coloured. Don't know why that surprised me as it's logical! Hope it went goes/went well x

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