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Stroke impacting vision

4 replies

Kayjay2018 · 28/07/2022 18:14

Hi just returned from the hospital. My husband (54) has been told that the "migraine" he though he was having yesterday was in fact a stroke. It has impacted his eyes, nowhere else, all markers you see in the advert are and have been fine.

Just wondering if anyone else has any experience of this and what level of recovery they had with their eyesight?

It's impacting both eyes with him being unable to see anything in the right hand peripheral part of his vision. We are both still in shock, I'm blaming myself as I wanted to call 111 yesterday morning and he was insistent it was a migraine, maybe it could have helped. He is staying in for investigations, they want to look at his heart, blood vessels in his neck and also his brain to see if there are any more issues. It was the blood clot type of stroke not the bleed one

Any advice, reading, questions we should be asking would be great.

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Kayjay2018 · 31/07/2022 05:02

Anyone? I believe the term is hemianopia

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Pangobam · 03/08/2022 15:57

hi there
Sorry to hear about your husband's sight. I had something similar recently and was shocked as I thought I am too 'young' for a stroke.

I had visual loss only- no other signs of a stroke. It was as if a black curtain had been pulled over 1/2 of one eye. I rang 111 and they rang ahead to A and E , where I was treated, and they did the tests you mention, started meds and the sight came back. They said it is amaurosis fugax, I have had several TIA's (mini strokes) and I was banned from driving for 3 months until they were confident the meds had sorted out the reasons it happened, although I remain at higher risk for a full stroke.

Fatigue in the months to come is common (which is annoying). The hospital said to have an eye stroke or TIA is actually sometimes very lucky, as it means they can treat you before major stroke happens that leaves you with brain damage etc.

The Stroke association are really helpful and it's worth contacting them if your GP isn't brilliant for follow up care . (I haven't been able to get an appointment with mine at all). Best wishes to your husband.

Understatedcarriage · 03/08/2022 16:04

Sorry to hear about your husband's stroke.
It sounds like he has right sided hemianopia. This link may be helpful www.stroke.org.uk/effects-of-stroke/physical-effects-stroke/vision-problems-after-stroke<a class="break-all" href="https://www.stroke.org.uk/effects-of-stroke/physical-effects-stroke/vision-problems-after-stroke" rel="nofollow" target="_blank">https://www.stroke.org.uk/effects-of-stroke/physical-effects-stroke/vision-problems-after-stroke

Kayjay2018 · 04/08/2022 05:16

Thank you both. The CT confirmed it is a stroke in his occipital lobe, it has left him with right sided hemianopia, although he feels he there is some kind of shimmering colour there, so not missing fully.

He has been discharged last night with blood thinners and statins as there is no sign of a cause or ongoing issues.

That's it, there is a two month wait for occupational health support, no mention of rehab or any attempt to help him recover the vision and we have to get an appointment at a local optician to actually map his remaining visual field. It feels like there have been great strides with rehabilitation of other aspects of stroke damage and vision is lagging behind somewhat. I've found a few links on various websites to Read Right and Easy Search and am looking at other options too, just seems sad that he is expected to just get on with life when losing half of your sight is actually quite major

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