Dealing with the frustration

[Bonkerz]

Ok don't want to drip feed. Also don't want a diagnosis.
I'm seeing the doctor.
I'm more after advice with how do I deal with the total frustration that I'm feeling about having no answers to any of this and just so many questions me opinions.
Back in May I started getting dizzy and breathless. Sats would drop low after no exertion. After 2 weeks of various docs appointments and a chest x Ray I was given a steroid inhaler which really helped and this symptom is now improved greatly.

By the end of may I had started falling over. I was unable to move my legs and arms. It felt like I'd had an epidural. My legs can't lift more than a few inches off the floor and I have hardly any strength in my arms which I can't lift higher than my shoulders and lifting a full kettle is impossible.

This whole time I'm doing my best to continue working and hide my issues from my kids but it's getting harder to do.

I've started using a crutch around the house because I can't lift my legs high and am scared of falling. I'm avoiding leaving the house.

Bloods have showed I have an issue with my liver but no specifics so more bloods being done.
Docs tests show nerve issue on left hand side in foot and also nerve issues in both hands. I'm waiting for an MRI

While I have no answers I'm getting more and more frustrated with my body which just won't do what my brain is telling it to do.

I'm due to go on holiday next week with my youngest (11) and I'm scared I won't cope.
I want a magic cure but that's not possible.

Docs are throwing out suggestions like lupus/ MS / hepatitis etc but no answers.

X

I'm now changing drugs so feeling a little spaced out just don't know how to help myself right now.
Maybe I'm wallowing.
Also realised today I've lost 8kg in 4 weeks which isn't a bad thing tbh but it's because I simply struggle To eat due to the pain.

Updating and hoping someone reads or can give support or help.

So all bloods have come back normal except the liver I've now come off the only drug that could cause such a problem and will be tested again today n a few weeks.

I'm still struggling to walk, my feet are in concrete. Climbing stairs is now with a crutch to support. I have this horrible shaking in hands and legs. My arms are so weak I struggle to lift a kettle and my hands are cracked and sore despite moisturising constantly.

I've got a referral to a spine specialist but nhs waiting times are obviously never ending.

I made an appointment today with a chiropractor for tomorrow morning. He feels I need a neck MRI which through him and private is £275. Tomorrows assessment is costing £65.

I don't feel I have any choice but to try and loan the money to try this route.