Can't believe I have only just found this thread and I will read through the previous thread over the next few days.
My efgr was 12 in April and I suspect is lower now. I feel very tired but often don't sleep well. I have a meeting at the hospital next week to assess my suitability for pd.
I had a stark warning of my limits a few weeks ago. I was at a wedding. As usual there was a lot of standing around after the ceremony while the wedding party had their photos taken. I started to feel tired and looked around but there were no chairs nearby so I continued to stand. I then felt a numbness in my legs so I decided to shift position in case I was standing awkwardly. At that point I collapsed but was still holding my glass ( of water!) upright!
I felt fine afterwards ( apart from the embarrassment) but it was definitely a reminder of my limitations. I'm going to my sons graduation in a few weeks so am a bit worried about lots of standing there too.
My BMI is too high for me to be considered for a transplant. So I have decided to have weight loss surgery. Most private hospitals won't operate on me because of my poor kidney function and the NHS waiting list is literally years long. I felt very stuck but have now found a private hospital in London which will operate on me so I am scheduled to have that surgery at the end of next month.
There is a risk that a general anaesthetic will adversely affect my kidneys and could push me into dialysis but I think I am so close to dialysis anyway it is a risk I need to take.
My poor kidney function was caused by hyperparathyroidism - the rogue parathyroid was removed 2 years ago but sadly the damage had already been done to my kidneys.
Luckily I am not working - I tend to get up late and then I manage reasonably well. When I meet friends they say how well I look but that is because I make sure I pace myself!