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Acute pancreasitis twice.

1 reply

Hunnypieprank · 04/06/2022 00:49

Hi all,
So I thought I might post my story to share what happened to me.
So over 10 years ago. i unfortunately developed acute moderate to severe pancreatitis due to gallstones formation. I don't smoke or drink very rarely.
I unfortunately had the symptoms for a while. The excuration tummy pains and the fevers. Without realising how serious I was. After a few weeks in hospital and a keyhole surgery of my gallbladder 6 months later . I began to recover. And i was very lucky as I nearly left it to late. I was actually overweight at that stage.
Over the past numerous of years. I was mindful of what happened to me and thanked God for everything.
But fast forward to last year I developed a windy pain. Nothing to serious at first and conspitation. I attended to my GPS with a tummy examination and full bloods which came back as normal. And life resumed for me. At this point I note I felt I was at my most healthiest. I had lost weight slowly new eating habits.
The windy pain was frequent but didn't last long. I was burping a lot and often drank coke to release my windy pain. Or eat buscopan I had no vomiting or no fevers it was more of a cramp feeling and conspitation. I was meaning to go back to the Dr but I put it off. I also could not tolerate green food.
I woke up last week with a terrible pain but it was more windy and a slight centralised tummy pain. I was also start to vomit. In which I knew it was serious as a result I attended my a n e .

Even when I was having my examination I gave them my medical history as I not attended that hospital beforehand. The very nice dr said that its most likely severe conspitation and acid reflux. My vitals were fine. But awaiting on blood results. On receipt of them he called me and told my worst fears to me plus liver gone crazy. While I was waiting for my medical intervention someone in the waiting room said to me. Your as pale as a ghost your probably hemorrhaging inside. I cried.
I had a mrcp which suggested a stone formation and a dialectical of the bull duct. 13 years after my gallbladder removed.
I had to undergo an ercp procedure. In which it showed the stone had passed but the cleaned up my bile area. I also had mild bleeding. After a few days in hospital I was able to go home because of improvements of my bloodworm. But I'm tired and weak. I also annoyed at myself for not going back to the Dr's weeks ago. I had no fever. At the time I had nothing to suggest to me that it was serious exempt the windy bouts of pain. Does anyone have any tips of improving my pancreas to health again.

OP posts:
SleepyMathematician · 04/06/2022 06:52

I’m sorry you’ve been through this. There’s nothing like pancreatitis for pain or feeling weak. Its going to take you a while to feel normal I’m afraid, think months rather than weeks, but you will get there.

First of all, and you may have been told this, but no alcohol, ever again in your life, and I mean none. Not in cooking, not a small sip at Christmas or weddings. This holds even if your pancreatitis was completely non alcohol related. My first attack was gallbladder related and I’ve since had milder autoimmune flares but I’ve still been told no alcohol ever, and that’s the first thing they’ll tell you on the pancreatitis forums. Pancreatitis is a potential killer and alcohol always irritates it - it isn’t worth the risk.

Secondly, eat low fat foods. We are talking really extremely low fat here. The pancreatitis forums, full of people with chronic nor repeated pancreatitis recommend under 10g fat a day. After my first bad bout that’s what I had to stick to for a long time. It means your food is going to be very plain, though you can have spices etc. it means plain chicken with no skin, grilled, with vegetables, potatoes no fat, boiled rice, etc. Your pancreas needs time to recover and fat aggravates it and gives it work to do. If you head over to www.pancreatitis-forum.org.uk/ you’ll find a ton of tips on foods over there. For about 8 months I had to cut all cake, biscuits, even a lot of dairy and eggs, because the fat content was too high. I can have them now so it wasn’t forever, but I do take Creon (more about that in a mo) and I still can’t eat extremely fatty things or I end up back in hospital with a flare.I’ve had my gallbladder removed too and things are so much better since, but I still have to take care.

Now, things to badger your doctor over. If you haven’t had a test for coeliac disease, get one. Untreated coeliac disease was the root reason for all my problems. It destroys the villi in your intestine which starts to turn off the process which alerts the pancreas when you eat, and can cause havoc. Next is to get a stool test to check for pancreatic insufficiency. If you have any degree of this, you need Creon and many people recovering from pancreatitis benefit from it anyway, but it’s expensive and doctors can be reluctant to prescribe just for that. But if you get the test and it shows any pancreatic insufficiency, they should prescribe it. It’s a digestive enzyme that does the work of the pancreas for you. Creon will digest your fat for you. You can’t overdo it or take too much and I found I needed a crazy amount at first but need very much less now. You can get digestive enzymes over the counter which is worth considering but they won’t be nearly as strong or effective as Creon.

Lastly, good luck and take it very, very easy. Your body has been through a huge amount and you won’t get better overnight, but you will get better. Head on over to the pancreatitis forum I linked as they are brilliant and will give you so much more specific and up to date help than I can, as my main acute pancreatitis attack was five years ago now.

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