I got covid in March. It triggered a flare up of a chronic condition that I have but it has always been mild. This flare was major though and I ended up very ill and needing life saving surgery. I recovered quickly and got home.
Then I suffered a set back and was readmitted. Everything was going well, talk of me getting home (again) and another set back.
At this point I was on my 4th consultant in charge of my care. They work on rota. The 4th consultant spoke with 3 other colleagues to make a plan for my care to hopefully make sure I would be ok. It was a very slow and cautious plan. I was pleased with it because well things had already gone wrong twice and there was talk of me needing another surgery.
It was all going fine, I was improving then the next consultant took over my care. He barely introduced himself and I never actually caught his name. It was as if he had not bothered to read my notes or had completely disregarded the other doctors. Remember 4 of them had discussed my case and made the plan.
He halved my treatment, reducing Iv antibiotics to oral after 3 days as opposed to the original 7, stopped my Feeding tube and put me back onto food after 3 days instead of 7 too.
He never once examined me, barely let me speak or have an opinion.
He just looked at the blood results and based everything on that.
I asked him to talk through with the other doctors. I realise now I should have just asked for a second opinion but I was so exhausted and felt bad pushing to stay in hospital when my heart wanted me home with my kids. I trusted him.
I went home on oral antibiotics. The course finished and I started to feel better for a few days. I thought I was in the right road.
Then I started feeling nauseous over the weekend. Then the sickness and diarrhoea started again and I lost my appetite again.
I saw my gp today. I hadn't been very sore until she prodded me but I've been very sore since.
It has been decided I have to go back into hospital tomorrow.
If it turns out the infection is back, I feel the last consultant is responsible because he speeded up my treatment- pretty sure he just wanted the bed. I really hope they don't keep me in tomorrow but I just have a horrible feeling.
I'm really terrified they will decide to operate again. My scar is healing nicely.
I don't want to go in and leave my children again. This having a frail, sickly mummy has really affected them. I feel so guilty. I have been trying so hard to do everything right to make sure of my recovery.
I'm exhausted. I'm beginning to doubt that I will ever be properly well. I just want to be able to take my kids to the park and look after them. They are at primary school. They shouldn't be worrying about me.
It sucks. I realise it could be much worse. It isn't like a terminal cancer diagnosis but it has been relentless and I'm very tired. There is also no cure for my condition although you can go into remission. Keep your fingers crossed that they find I simply have a tummy bug tomorrow.