CHD ongoing treatment.

[Hoolahoophop]

Just wanting a hand hold really. My 5 year old was born with a relatively simple to correct Congenital Heart Defect. Only the operation was not as successful as it usually is. I found out today that the doctors think a fourth open heart surgery will be necessary. I'm gutted. My little one has been through so much. I don't want to go back there again. I know this won't be the fix either.

Oh I am so sorry to hear this, my heart goes out to you both. As a parent I cannot imagine how you hold yourself together through all of this. I hope you have plenty of support. Feel free to tell us about your little one if you would like.

Thank you. We will get through it, we have done it three times so far, have strong family support. But each time gets harder. DD is more of a person each time, more aware of what is happening and of course the risks, and side effects increase with each surgery. Her older sibling becomes more aware and is getting more emotionally fragile as time goes on. I know that I cant be with both children when it happens so will have to put older DC in the care of family, and I know he will hate that and want his Mummy. I just want it all to go away. DD is the most outgoing, cheeky actress you could imagine. The sort of 5 year old that appears on books and films. She's amazing and strong and brave and I want to protect her from this but I cant.

My heart goes out to you reading how you describe your dd. It is hard enough being a parent as our job is to do everything we can to protect them. It must be so tough on your other daughter too.
It seems so unfair that your little one has spent so much if her short life in medical care.

Do you manage to look after yourself, I can't imagine how you have the time or headspace. Do you work?

Are you on Facebook? If so there is a very supportive group on there.
It must be so hard sending your child back into major surgery. My daughter is still on a watch and wait plan and on exercise restrictions.