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mum going down hill fast

32 replies

smartiejake · 11/01/2008 00:44

Have just got back from the hospital where my mum was rushed late this afternoon. She has a serious and rare condition called wegeners granuloma matosis which I won't go into now but she has been very ill with it for the last year and the docs are finding it very difficult to treat.
My dad went out to do some shopping and when he came back found mum rambling and making no sense. He called one of her doctors who asked for her to come into hospital. I arrived a few hours later (he had not called me and had forgotten to take his mobile) and she is incoherent. She kept repeating the same phrase over and over- sounded like " eflate" . I was convinced she had had a stroke but the doc we spoke to said her bloods showed an infection and it can cause this kind of delerium. She has no weakness in her limbs. They haven't ruled out stroke but surely if there is any doubt she should be scanned.I thought that the first 24 hours were crucial in stroke patients? She is only 62 and up till a year ago was fit as a fiddle and swimming 5 miles a week. His evening she seemed so "old" and confused . Awful to see your mum in such a state. SHe would hate it if she was aware of what was happening.

Feel totally numb at the mo. Feel like I should be wailing or crying or something. Feel like a complete freak not to be feeling more- is this usual? Sorry rambling now as it's late but need to share it with someone.

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smartiejake · 11/01/2008 17:17

Went back to see her today and she is more lucid. Still very poorly but talking a little (making sense too) and responding better. Such a relief- I didn't know if I would ever see HER again (if you know what I mean)
Docs are all running round trying to sort out treatment. Strange thing is that the MRI scan she had on weds showed an improvement in her disease. Apparently the chemo she is having knocks all her defences down so she is v. prone to infection.

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smartiejake · 11/01/2008 23:23

bump

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brimfull · 11/01/2008 23:42

I'm glad she is lucid smartie-what a relief for you.
SOunds like the docs are doing a good job.A stressfull time for you all!

Heres hoping you see more improvement tomorrow.

smartiejake · 11/01/2008 23:47

Thanks gg

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smartiejake · 13/01/2008 20:06

Mum continues to improve. She was awake the whole 2 hours I visited yesterday and dad says she is even better today. She is along way from being right,and there is a long road to get her disease into remission but she's not at death's door as I feared on Thurs night. Thankfully she remembers nothing of what happened.

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brimfull · 14/01/2008 23:43

sorry missed your last post

great news smartie

hope she'll be out of hospital soon

smartiejake · 15/01/2008 17:48

Thanks gg. Hope all your tests are ok

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