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Where next for DS (19)'s throat problems?

6 replies

SoreThroat22 · 15/04/2022 11:49

DS (19) has basically been ill, off and on, for over 6 months now. He has some learning disabilities which means that I have to help him access healthcare etc. It's also a problem as he's not very good at explaining and advocating for himself and gets easily fobbed off.

He's basically been ill with various things such as covid (x 2 July 21 & Feb22), sore throats, swollen glands (neck), sore tongue, tonsilitis.
Had antibiotics twice. Second time we think they caused oral thrush, which has only just gone after a month.

He's at uni, so I expected some of the 'run down in the first term' thing, but this seems beyond that. He has been home for two weeks and is still struggling (sore throat, swollen glands, sensitive tongue (citric stuff stings)), fatigue too, as all the other things disturb his sleep.

He has had phone consultations, sent videos/ photos etc, but he can't seem to get a face-to-face appointment, or any tests anywhere, and now he's home our GPs here won't see him.

I honestly don't know how to help him? Where to go? The NHS seems shut unless you're an emergency. When they hear he's young, 19, and it's 'just' a sore throat they just redirect to a pharmacy for yet more paracetamol.

I think he needs a throat swab and perhaps blood tests? How/ where can we access these? We could pay to go privately, but we don't have huge savings.

As his mother, my gut feel is this is something more serious than just an on-going cold/ sore throat!

OP posts:
SueSaid · 15/04/2022 13:14

I would ring 111 and get him an appointment. At the appt say you want a throat swab doing, you want bloods checking.

Say this has been going on for weeks/months, he is unwell and needs investigations like basic bloods carrying out.

111 is basically out of hours drs or nurse practitioners. It doesn't have to be an emergency. You may find nurse practitioners a bit more thorough. Has anyone mentioned glandular fever? Has his temp being up?

SoreThroat22 · 15/04/2022 16:23

His temperature was up for a while, but not any more. I hadn’t thought about glandular fever, although it’s something I had as a teenager!
He spoke to 111 a few weeks ago, but they wouldn’t book him anywhere to see anyone in person. I guess he just wasn’t persistent enough. This is why I want to try to sort it out while he’s home.

OP posts:
CuddlyCactus · 15/04/2022 16:27

Glandular was my immediate thought OP

tiredanddangerous · 15/04/2022 16:32

My first thought was glandular fever too

vastgrandupgrade · 15/04/2022 16:34

First year at university is peak time to get glandular fever for anyone who hasn’t had it before that

SueSaid · 15/04/2022 16:35

@SoreThroat22

His temperature was up for a while, but not any more. I hadn’t thought about glandular fever, although it’s something I had as a teenager! He spoke to 111 a few weeks ago, but they wouldn’t book him anywhere to see anyone in person. I guess he just wasn’t persistent enough. This is why I want to try to sort it out while he’s home.
I would ring up for him, I know he's 19 but just tell him you're concerned and explain to the person answering the call he has some learning disabilities so you are his advocate.

I'm not suggesting lying just tell them what you need to get him checked, say he is lethargic can hardly swallow is taking regular painkillers, say he keeps spiking a temp even if it isn't constant, say it's been going on weeks and you want him seeing, don't ask for them to suggest it. Then when he is seen go in with him. An adult with LDs needs an advocate present.

He needs bloods checking at the very least. Good luck.

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