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If your child was diagnosed with migraines did doctor do any sort of scans to rule out other causes?

31 replies

Wutipg · 08/04/2022 21:07

Just looking for advise. We have had hospital appointment with paediatric doctor who was pretty dismissive of our concerns. My child has had symptoms which do fit with the aura part of migraines. But the symptoms are quite scary for him - zigzag lines, numbness and tingling on one side of the body etc. he has had a neurological exam testing various reactions (touching doctors finger then touching his own nose etc)
he doesn’t get migraines aura that often. But he is prone to headaches most days. They seem most like tension headaches. Anyway I felt as a mum I had done my best and left the question to a doctor. But now I am wondering if they should have done more. Are doctor more reluctant to make referrals just now due to longer wait lists? Maybe we should consider a private mri if it is worthwhile. I was just wondering what others experience was with diagnosis. I plan to make a food diary for the next few weeks to see if we can work out if there is a trigger.

OP posts:
NK346f2849X127d8bca260 · 09/04/2022 23:43

Tomatoes in any form are my son's biggest trigger, neurologist said it is an issue with many migraine sufferers. We were recommended to get tinted glasses for school lights and screens. Stress and tiredness has always been a trigger, even now and he is 21 this month.

makingmiracles · 09/04/2022 23:50

Ds started getting them around 12/13, he gets aura/blurred vision, then he gets numbness and tingling down his arms and hands and weakness down his legs, then nausea and violent vomiting then the migraine pain.
He was originally put on an anti emetic with sumatriptan sprays, which worked to an extent for about 2yrs and then they just stopped having any effect, he’s 16 now and starting GCSEs so the Gp has put him on zolmatriptan and propranolol to try and stop them happening at all.

Ds trigger is neck movement, he can’t jump on a trampoline, or go on a off rd buggy or any jumpy type pe sessions as the jolting movement triggers a migraine, we haven’t identified any food triggers. Ds says he feels like something doesn’t feel right with his neck.

Doubleraspberry · 10/04/2022 00:00

My son has migraines, has had them for about three years. He has ASD and isn’t very good at explaining how it feels. He was seeing a paediatrician who ended up referring him for an MRI just because we described how zoned out he gets when a migraine starts and he wanted to rule out absence seizures. But now he’s been discharged with no meds or further treatment as it was clear and sleep seems to sort him out at the moment.

OneMorePieceofCheese · 10/04/2022 08:09

DD9 had a private MRI as she had migraines and a drooping eyelid.

I don't think we would have got it on the NHS. MRI thankfully all clear and we have dispersible Sumotriptan for migraines now.

Wutipg · 10/04/2022 08:36

Thanks it does seem a shame that mri isn’t standard when neurological symptoms are presented

OP posts:
Caramac555 · 10/04/2022 08:40

Yes dd aged 12 had mri, but only because she was diagnosed with hearing loss at about the same time

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