What is going on???

[Sunflowersinthewind]

I am just so fed up, something has been wrong with me for rhe last 6 months but it's all so vague and weird that I do feel like I am just imagining it.

6 months ago had an episode where I went to A&E as my brain felt like it was flipping in my skull and I felt like I was going to pass out. Also had pins and needles down left side of body. They diagnosed vertigo and said pins and needles were probably muscular.

Shoulder pain and pins and needles never really went away and in January I had an xray and my left shoulder is partially dislocated.

Also I am constantly tired to the pont sometimes that walking upstairs to be bed feels unachievable. I get episodes of light-headedness which GP has said is down to maybe low blood sugar. I have had three blood tests and all have come back normal.

I sometimes get heart palpitations and my heart races. Also I can feel my pulse a lot on the left side of my ribs and sometimes feel like my bottom left ribs are sticking into me and it all feels strange on left side. Like I can feel my pulse now where my bra is resting on my ribs.
It feels like I want to lean to my right to alleviate that. I am waiting on US of abdomen for those weird symptoms. Had a chest xray which came back clear.

Then finally, I went to see my doctor on Wednesday as I woke up to left leg feeling like it had gone to sleep. I have just had covid so thought it was some weird covid thing. He sent me to hospital and the doctor there has booked me in for an MRI and referral to neurology. Leg is still numb and slightly weak. My heart still palpitates quite a bit and my shoulder has got a lot worse with it feeling like it is not in joint properly and I wake up with that arm numb but it goes away.

This is long sorry. I feel really down and fed up and I think I just want a rant

Sorry op, and I'm not medical in any way, sounds neurological and I'd be pushing for more. MS would fit.

MS certainly came to mind but many other conditions do mimic MS. I've had similar symptoms which are purely anxiety, low vitamin D and perimenopause/low oestrogen. I hope you get the answers you need soon.

Thanks both. I suppose the MRI will flag if it was MS? My vitamin levels are all good. I was wondering about peri-menopause as I'm 39 so getting to that age.

Can you test for perimenopause at all?

Yes, mri will show brain or spine lesions if it's MS. The referral to Neurology suggests something is going on.

You may have an MRI with contrast.

I believe you can have a blood test for peri.

I was diagnosed with ms last year with similar symptoms. I'm glad they are taking it seriously and giving you an mri. I waited four years for mine as I was just fobbed off as it being anxiety/menopause. At least either way you'll know now.

@forlornlorna may I ask what your symptoms were please?

@Sunflowersinthewind I had a few bouts of awful vertigo that got put down to possible ear infection, but my balance didn't return to normal. I was referred to ENT and by then I also had some numbness in my face, then facial palsy. This corrected quite quickly and ENT said I was having vestibular migraines. These symptoms got better but then happened again the following year and again a little over a year again. Docs kept telling me it's migraine and menopause. I woke up last summer unable to pass urine and strange buzzing feeling in my legs. Taken to hospital where they finally did an mri with dye. I was diagnosed there and then x

Sorry to hear about all your suffering. Perhaps look into MCAS, POTS & EDS as they are often found together as a trifecta & some of your symptoms match.

It can be difficult to diagnose, is often misdiagnosed & you can have M.E/CFS as a result of living with them all like I do.

I hope you find solutions x

@forlornlorna thank you for sharing, that sounds awful, sorry it took so long to diagnose

@MissMCAS I will have a look at that thank you