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Terrified about losing spleen and part of pancreas

3 replies

flyingumbrellas · 12/03/2022 23:00

Hi everyone,

I'm an emotional wreck these days. I've lost both of my lovely parents in the last 7 years. Then, in Jan I got ill and eventually found out this is because I have a premalignant, massive tumour growing on my pancreas. I've had to stop working because it's causing bad symptoms (breathlessness, stomach pain, dizziness, exhaustion). This has made me feel like a failure. I love my job (teaching) but just can't do it right now. The GP just signed me off, told me 'You need to spend time with your family. ' Some friends tell me be positive because it's not cancer, and I agree and feel very grateful it was found when it was, but I'm still terrified about losing half my pancreas and my spleen. I also have PCOS that causes major hirsutism and am distraught as after my splenectomy I'll have to take daily antibiotics forever and this means I can't have laser treatment for my facial hair, which is awful if left unlasered. I'm also petrified I'll get diabetes now, both parents had it and it wrecked their health so much. Today my symptoms were horrendous and I couldn't do much. I was looking after dd alone who is 10. I felt so bad, I couldn't do much with her today, just Ieft her to do craft etc in living room while I rested. I feel so useless and angry at myself. Dh was at work. He is kind and a great Dad to our dd but I'm worried dd will give him a tough time when I'm in hospital (could be there upto 2 weeks), as she's already being cheeky and proper tweenage mood swings and defiance going on. Today was a bad day and hopefully tomorrow will be better but I'm feeling so sad about everything. Doctors are saying this tumour is just bad luck and it's not my fault I've got it, but I have a high BMI and just feel so angry at myself about it. I walk everyday now and am not snacking in between meals anymore. I now need to work on smaller portion sizes and better food choices in my meals (which are healthy in the main, but I think my portions are the issue). I think I'm just tired and after having 4 vaccines the last fortnight and ongoing nausea caused by this tumour. I don't want this surgery as it's major but I have to, I've got no choice. I'm scared though and just want my life back. Sorry to moan x Just petrified. Thank you for listening x Am correctly on anti depressants and seeing psychologist at hospital on Tues, to discuss these issues.

OP posts:
bloodywhitecat · 12/03/2022 23:05

DH had a Whipple's, he did really well afterwards. Amazingly well in fact. He came out of hospital after 11 days and walked two miles that day, he was back to mowing the lawn within a month and was fit to return to work within two months, the surgery gave him back his life.

RishiRich · 12/03/2022 23:11

I had this exact surgery 11 years ago. The surgery wasn't nice but I was back at work after a couple of months and had a baby a year later. My life has been completely normal since then.
I only took antibiotics for 5 years, then stopped because they just made me feel ill. The consultant wasn't bothered. I was in the shielding category but had covid last year and was completely fine afterwards.

Honestly, the worst thing was the months waiting to know whether it was cancer or not. It wasn't.

FlipFlops4Me · 14/03/2022 15:57

I had bowel cancer and they removed my spleen at the same time. Exactly 8 weeks later I had surgery to remove pre-malignant tumours from my pancreas. I had chemo afterwards but that was 14 years ago and I have been fine.

After the pancreatic surgery I instantly developed diabetes and have been treated as a type 1 diabetic ever since. I also needed enzymes with meals for about a year to help my digestion, but I haven't used them for a long time.

I went back to work about 3 months after the second surgery and will be retiring in December on my 66th birthday. About a year after the second surgery I hit the gym and got very, very fit - I took up ultra marathon rowing because I didn't like feeling like a blob!

Life has been good - I have limitations but mostly I just ignore them. At the moment I wfh for 5 hours day and am my DH's full time carer
and I have two small dogs to look after.

The surgery fixed my problems and being left with diabetes was a very small price to pay for my life.

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